The invisible illness : A literature study about women's experience of living with endometriosis

Berntsson, Emmie, Darell Gustafsson, Rebecka
2021 · W7112474121
article OA: green CC0
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⚙ AI-generated summary by gemini-2.5-flash-lite, 2026-07-15 ⓘ

This literature study analyzed women's experiences with endometriosis, revealing themes of emotional distress from pain and anxiety and new challenges arising from healthcare distrust.

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I can’t access the paper’s content because the provided text is blocked by an anti-bot/proof-of-work page (no study methods, results, or limitations are visible). Without the full text, I’m unable to accurately summarize what the literature review studied, how it was conducted, or what it found. The paper does not explicitly discuss endometriosis or adenomyosis; it was included in the corpus via a keyword match in the upstream search index.

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Abstract

Background: Endometriosis is a chronic disease that affects about ten of a hundred fertile women and means a profound change and suffering for them. Endometriosis means that tissue from the endometrium ends up on other tissues and organs where it begins to grow, which leads to inflammation. Aim: The aim of the study is to shed light on women’s experience of living with endometriosis. Method: A literature-based study based on qualitative research to gain a deeper understanding of the phenomenon. Eight articles were analyzed and resulted in two main themes and six sub-themes. Results: The results are presented in two main themes Emotional stress, which describes how women live with pain and anxiety that affect relationships and self-esteem. New challenges, that describe all the challenges women face and how they are met and distrusted by healthcare professionals. Conclusion: Women living with endometriosis need adequate information as well as emotional and instrumental support. These needs can be met when the nurse takes responsibility for nursing and provides person-centered care.
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endometriosis

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