Editorial: Highlights in quality of life 2021/22.

OA: gold CC-BY-4.0
AI-generated summary by claude@2026-07+body, 2026-07-16

This editorial highlights the growing research on quality of life and patient-reported outcomes, detailing the validation of the Endometriosis Participant Questionnaire and reviewing community-engaged approaches to cervical cancer prevention in Sub-Saharan Africa.

One-sentence paraphrase of the abstract; not a substitute for reading it. No clinical advice. How this works

AI-generated deep summary by claude@2026-07, 2026-07-16 · read from full text

This editorial surveys trends and methodological considerations in quality-of-life research, emphasizing patient-reported outcome measures (PROs) and the need to validate questionnaires through translation and cultural adaptation. It highlights, with a protocol described in detail, the cross-cultural adaptation process for the World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonization Project Endometriosis Participant Questionnaire (EPHect), noting that endometriosis affects about 10% of women of reproductive age and that the tool has registered users across 22 countries; the editorial frames the endometriosis tool development as critical for non-surgical clinical and epidemiological data collection. It also summarizes a narrative scoping review on community-engaged cervical cancer prevention in Sub-Saharan Africa, using a CBPR framework and selecting nine articles, while discussing the role of community leadership and health workers in awareness and engagement. The paper does not explicitly discuss endometriosis or adenomyosis; it was included in the corpus via a keyword match in the upstream search index.

Read from the paper's body, not the abstract. Not a substitute for reading the paper. No clinical advice. How this works

Full text 11,148 characters · extracted from oa-doi-fallback · 2 sections · click to expand

References

1. U.S. Department of Health and Human Services FDA Center for Drug Evaluation and Research, U.S. Department of Health and Human Services FDA Center for Biologics Evaluation and Research, U.S. Department of Health and Human Services FDA Center for Devices and Radiological Health. Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance. Health Qual Life Outcomes. (2006) 4:79. 10.1186/1477-7525-4-79 2. CichowskiSGrzybowskaMEHalderGEJansenSGoldDEspuñaMet alInternational urogynecology consultation: patient reported outcome measures (PROs) use in the evaluation of patients with pelvic organ prolapse. Int Urogynecol J. (2022) 33:2603–31. 10.1007/s00192-022-05315-1 3. GrzybowskaMEWydraD. Responsiveness of two sexual function questionnaires: PISQ-IR and FSFI in women with pelvic floor disorders. Neurourol Urodyn. (2021) 40:358–66. 10.1002/nau.24568 4. MokkinkLBTerweeCBPatrickDLAlonsoJStratfordPWKnolDLet alThe COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international delphi study. Qual Life Res. (2010) 19:539–49. 10.1007/s11136-010-9606-8 5. WERF endometriosis phenome and biobanking harmonisation project (EPHect). (2023). Available at: https://endometriosisfoundation.org/ephect/ (Accessed January 15, 2023). 6. SinghDVignatJLorenzoniVEslahiMGinsburgOLauby-SecretanBet alGlobal estimates of incidence and mortality of cervical cancer in 2020: a baseline analysis of the WHO global cervical cancer elimination initiative. Lancet Glob Health. (2023) 2022(11):e197–206. 10.1016/S2214-109X(22)00501-0 7. BiyazinTYilmaAYetwaleAFentaBDagnawY. Knowledge and attitude about human papillomavirus vaccine among female high school students at Jimma town, Ethiopia. Hum Vaccin Immunother. (2022) 18(1):2036522. 10.1080/21645515.2022.2036522 8. RabiuIYahuzaZ. Knowledge and attitude towards human papilloma virus infection, vaccines, and cervical cancer prevention among school students in Kano, Nigeria. Adv Virol. (2023) 2023:2803420. 10.1155/2023/2803420 Summary

Keywords

quality of life, cervical cancer, prevention, validation, database Citation Grzybowska ME (2023) Editorial: Highlights in quality of life 2021/22. Front. Glob. Womens Health 4:1149030. doi: 10.3389/fgwh.2023.1149030 Received 20 January 2023 Accepted 10 May 2023 Published 26 May 2023 Volume 4 - 2023 Edited and reviewed by Georgina Louise Jones, Leeds Beckett University, United Kingdom Updates Copyright © 2023 Grzybowska. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. *Correspondence: Magdalena Emilia Grzybowska [email protected] ORCID Magdalena Emilia Grzybowska orcid.org/0000-0002-5311-3450 Disclaimer All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article or claim that may be made by its manufacturer is not guaranteed or endorsed by the publisher.

Text is read by the "Ask this paper" AI Q&A widget below. Extraction quality varies by source — PMC NXML preserves structure cleanly, OA-HTML may include some navigation residue, and OA-PDF can have broken hyphenation. The publisher copy (via DOI) is the canonical version.

My notes (saved in your browser only)

Ask this paper AI returns verbatim quotes from the full text · source: oa-doi-fallback

Answers must be backed by verbatim quotes from this paper's full text. Hallucinated quotes are dropped automatically; if no verbatim passage answers the question, we say so. How this works

Citation neighborhood (no data yet)

We don't have any in-corpus citations linked to this paper yet. The paper's references may be in our DB but unresolved to ``paper_id`` (resolution happens at ingest when the cited DOI matches a row we already have). Run the cross-source citation reconcile pass to retry.

Source provenance

europepmc
last seen: 2026-07-30T06:25:42.655704+00:00
unpaywall
last seen: 2026-05-21T05:10:58.409756+00:00
License: CC-BY-4.0