Editorial: Highlights in quality of life 2021/22.
This editorial highlights the growing research on quality of life and patient-reported outcomes, detailing the validation of the Endometriosis Participant Questionnaire and reviewing community-engaged approaches to cervical cancer prevention in Sub-Saharan Africa.
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This editorial surveys trends and methodological considerations in quality-of-life research, emphasizing patient-reported outcome measures (PROs) and the need to validate questionnaires through translation and cultural adaptation. It highlights, with a protocol described in detail, the cross-cultural adaptation process for the World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonization Project Endometriosis Participant Questionnaire (EPHect), noting that endometriosis affects about 10% of women of reproductive age and that the tool has registered users across 22 countries; the editorial frames the endometriosis tool development as critical for non-surgical clinical and epidemiological data collection. It also summarizes a narrative scoping review on community-engaged cervical cancer prevention in Sub-Saharan Africa, using a CBPR framework and selecting nine articles, while discussing the role of community leadership and health workers in awareness and engagement. The paper does not explicitly discuss endometriosis or adenomyosis; it was included in the corpus via a keyword match in the upstream search index.
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