Fondation recherche endométriose: the catalyst for endometriosis research in France
This paper describes the establishment and role of Fondation recherche endométriose as a key catalyst for endometriosis research in France.
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This article describes the creation and organizational framework of the Fondation recherche endométriose (FRE), established in January 2021 under the Fondation pour la recherche médicale (FRM) with the mission to accelerate innovative, multidisciplinary, and collaborative endometriosis research in France. It outlines how the FRE supports multiple research projects each year focused on understanding and treating endometriosis and disseminates educational content about recent advances, with governance led by an executive committee and supported by an international scientific committee. The paper also reports the establishment in September 2022 of a consultative committee of patients and caregivers to embed participatory research and place patients at the center of decisions, noting the FOUNDATION’s stated values of independence and integrity. This paper is centrally about endometriosis — it details the FRE’s purpose, governance, funding, and participatory patient-centered structure for advancing endometriosis research.
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