Development of the Quality of Teen Trauma Acute Ca­re Patient and Parent-Reported Experience Measure

Abstract Objective: Patient-Reported Experience Measures (PREMs) provide valuable patient feedback on quality of care and have been associated with clinical outcomes. We tested the reliability of a modified version of an adult trauma PREM on injured adolescents and their parents, adding questions on school, social, and family accommodation. Results: Test-retest reliability was assessed using Cohen’s kappa, weighted kappa, and percent agreement between responses. Directionality of changed responses was noted. Most of the study ran during the COVID-19 pandemic. We identified poorer reliability among constructs that varied from the norm during the pandemic, including maintenance of social networks, need of supports for school and follow-up care. Parents appeared to have more directionality of change of responses with reporting more negative in-hospital and more positive post-discharge experiences over time between the test and retest. Situational factors due to the COVID-19 pandemic and potential risks of recall bias may have limited the reliability of some parts of the survey. Retesting of this new PREM instrument outside of the context of the COVID-19 pandemic as well as delivering it in 2 phases to reduce the risk of recall bias may result in stronger reliability of the tool.