Applying and assessing the PEERS model on genetic counselling training in China: A mixed-method approach

Abstract Background: Due to the changing medical demands in the healthcare system, there is a need for the implementation of a standardised and professionalised curriculum for genetic counsellors in the practice of genetic medicine. This mixed-method study will observe and evaluate the first Peer Experiential and Reciprocal Supervision (PEERS) training program on genetic counselling among medical practitioners in China; to provide feedback and recommendation for future genetic counselling training and practices.Methods: A genetic counsellor training programme was held in December 10 and 11, 2016 in a foetal medicine unit and prenatal diagnosis centre in Shanghai with 59 participants from various clinical centres, hospitals and organisations in China. An ethnographic reflexive assessment combined with a structured questionnaire were used to provide insights and feedback on the overall training experience.Results: Results indicate an inadequate mastery of genetic and foetal knowledge; a lack of empathetic understanding and cultural sensitivity; difficulties in adopting a non-directive counselling approach; distance between reality and fictionality in the training; the overall training’s helpfulness.Conclusions: The professionalization of genetic counselling in China is in the making with the soaring demands for genetic counselling services; this first experiment of PEERS training turned out to be a needed experience, worth to be adapted to more medical centres across China, to better understand and face the challenges rising from genetic counselling practice.