Abstract
Introduction: Endometriosis is a chronic inflammatory gynecological dis-
ease, one of whose main symptoms is chronic pain. Generally, negative per -
ceptions of the disease as an obstacle/loss, harm, or threat are linked to
poorer adjustment, whereas positive perceptions of illness as a challenge,
value, or profit show the opposite pattern. The study aimed to investigate
whether pain-coping strategies and self-compassion in women with endo-
metriosis were associated with the perception of their disease in terms of
obstacle/loss, threat, harm, value, challenge, and profit.
Material and methods
The study group consisted of 265 Polish women with
a diagnosis of endometriosis. The online survey included three measures:
the Self-Compassion Scale (SCS-PL), the Coping Strategies Questionnaire
(CSQ), and the Disease-Related Appraisals Scale (DRAS).
Results
Perceiving illness in negative terms – as an obstacle/loss, threat,
or harm – was associated with catastrophizing about pain. Threat and harm
categories were also inversely related to self-compassion. Perceptions of
endometriosis in terms of value or profit were positively associated with
the strategy of reinterpreting pain sensations and by self-compassion. The
profit category was also negatively associated with coping self-statements,
whereas viewing illness as value or challenge was associated with the pray-
ing and hoping strategy.
Conclusions
Higher self-compassion and greater use of reinterpreting pain
sensations were associated with more positive perceptions of endometri-
osis, whereas catastrophizing was associated with more negative percep-
tions. These findings may help inform psychological interventions sup-
porting women with endometriosis, although longitudinal or intervention
studies are needed to determine whether modifying these factors changes
illness perceptions and improves functioning or quality of life.
Key words: endometriosis, perception of illness, self-compassion, pain-
coping strategies, chronic pain.
Introduction
Endometriosis is a chronic inflammatory disease in which endometri-
al cells are found outside the uterine cavity [1]. It affects around 10% of
women worldwide [2]. The most common symptoms include chronic pel-
vic pain, painful and heavy menstruation, dyspareunia, and difficulties
conceiving [3]. Endometriosis, accompanied by long-lasting pain, fatigue,
Małgorzata Puchalska-Wasyl, Katarzyna Wikiera
2 Arch Med Sci
and daily limitations, significantly disrupts wom-
en’s psychosocial functioning and reduces their
quality of life, as well as physical and psychologi-
cal well-being [2, 4]. Low mood, depression, anxi-
ety, feelings of guilt, shame, and low self-esteem
are typical of women with endometriosis [5–7].
Additionally, lack of understanding from close
family members may result in feelings of loneli-
ness and social withdrawal [8, 9].
According to Lazarus and Folkman [10], stress
experienced during illness is influenced both by
its physical consequences and by the meaning
that patients assign to it (i.e., their subjective in-
terpretation). Lipowski [11] distinguished sever -
al categories that people commonly attribute to
their condition. Categories with positive meaning
include: challenge – seeing illness as a chance for
mobilization or growth; profit – perceiving sec-
ondary gains such as receiving care or reduced
duties; and value – attributing deeper significance
to the illness and seeing it as an opportunity for
life reflection. Categories with negative meaning
include: obstacle/loss – viewing illness as blocking
goals and causing loss of health or independence;
threat – experiencing it as dangerous and unpre-
dictable; and harm – interpreting it through guilt
or a sense of being wronged.
Extensive research shows that perception of
one’s illness plays a key role in patient adaptation,
psychosocial functioning, and emotional respons-
es. For example, women with endometriosis often
hold negative beliefs about the consequences,
chronicity, and controllability of their condition,
which are associated with higher stress and low-
er quality of life [12, 13]. At the same time, their
personal narratives emphasize emotional burden,
disrupted life plans, and challenges to self-identity
[14]. In this article, we do not aim to focus on the
consequences of illness perception for patients’
adaptive functioning. Rather, we seek to deter -
mine how illness perception is shaped in women
with endometriosis – specifically, whether it can
be predicted based on pain-coping strategies and
self-compassion. This raises an important ques-
tion: why these particular predictors?
Coping strategies for pain are acquired early
in life [15]. Thus, the ways individuals have pre-
viously learned to cope with pain may shape their
perception of endometriosis – a disease in which
pain is a core symptom. Coping with pain involves
cognitive (i.e., reinterpreting pain sensations, ig-
noring pain sensations, coping self-statements,
and catastrophizing) and behavioral strategies
(i.e., increased behavioral activity, diverting at-
tention, and praying and hoping) aimed at re-
ducing discomfort [16]. Studies based on the
Common-Sense Model [17] have primarily con-
ceptualized illness perception as an antecedent of
coping and health outcomes, with evidence link-
ing it to general coping strategies and psychologi-
cal adjustment in chronic illness and pain [18–20].
In research on illness perception, pain-specific
coping strategies are less frequently investigated
compared to general coping, and when examined,
both illness perception and pain-specific coping
are typically treated as predictors of the same psy-
chological or functional outcomes, such as depres-
sive symptoms, anxiety, or quality of life [21, 22].
However, the potential role of pain-specific coping
strategies as predictors of illness perception re-
mains underexplored, although a recent study has
shown that a pain catastrophizing strategy can
predict an accepting attitude toward illness [23].
The present research addresses this gap by ex-
amining whether different pain-coping strategies
predict distinct categories of illness perception in
women with endometriosis.
In the context of pain coping and illness per -
ception, self-compassion may also play an import-
ant role. It is defined as an attitude of kindness
and understanding toward oneself in the face of
suffering, acceptance of one’s flaws and failures,
mindful awareness of one’s emotions, and the
recognition that suffering is a part of the human
condition [24]. The existing literature has not di-
rectly examined the relationship between levels of
self-compassion and specific categories of illness
perception. However, research shows that higher
self-compassion in individuals with chronic con-
ditions is associated with better pain adaptation,
lower distress, improved quality of life [25, 26], ill-
ness acceptance, greater resilience, and construc-
tive coping with problems [27–30].
Although pain coping strategies and self-com-
passion have been studied in relation to pain
intensity, emotional distress, and quality of life
in chronic illness populations [16, 31–33], their
combined role in illness perception – particularly
in women with endometriosis – remains under -
studied. Our study adds to the existing body of
research by emphasizing the meaning of illness
rather than solely symptom severity, while high-
lighting pain-coping strategies and self-compas-
sion as potentially modifiable factors associated
with illness perception and potentially relevant to
patient quality of life and adaptation to the illness.
Material and methods
Participants
The study group consisted of 265 Polish wom-
en with a diagnosis of endometriosis. The subjects
were in early and middle adulthood; the age range
was 20–52 years (M = 31.3; SD = 7.28). Most of
them (N = 73, 27.5%) lived in a city with a popula-
tion of up to 150,000, 70 (26.4%) respondents lived
Illness perception, pain coping, and self-compassion: a cross-sectional study of Polish women with endometriosis
Arch Med Sci 3
in a city with a population of more than 500,000,
64 (24.2%) participants lived in a city with a popu-
lation of 150,000 to 500,000, and the fewest lived
in a rural area (N = 58, 21.9%). The majority of
women had a university degree (N = 165, 62.3%),
56 of them (21.1%) had a high school education,
34 participants (12.8%) were in college, while the
fewest respondents had vocational education
(N = 8, 3%) or primary education (N = 2, 0.8%).
The vast majority of women (N = 203, 76.6%)
were in a relationship at the time of the survey,
52 (19.6%) described their status as single, while
the fewest women declared their marital status as
divorced (N = 9, 3.4%) or widowed (N = 1, 0.4%).
In the study group, 79 (29.8%) women had at least
one child, while 186 (70.2%) women were child-
less. The range of years of experiencing symptoms
of the disease ranged from one to thirty years
(M = 9.92; SD = 7.05), while the mean pain in-
tensity score assessed on a scale of 1 to 10 was
M = 6.75 (SD = 2.84).
Procedure
The research was conducted online using con-
venience sampling. From November 2024 to March
2025, the survey link was posted on Facebook
groups and portals for women with endometriosis.
Participation was voluntary and anonymous. Wom-
en aged 18 or older with a physician-diagnosed en-
dometriosis, who gave informed consent, complet-
ed the survey. It included three questionnaires and
seven sociodemographic items (see Participants).
Completion took approximately 20–25 min.
Measures
The online survey included three measures, de-
scribed below. Table I shows internal consistency
coefficients for all the analyzed variables.
Self-Compassion Scale (SCS-PL)
Based on Neff’s original scale (2003) [34], the
Polish adaptation [35] consists of 26 items rated
on a 5-point scale (1 = “almost never” to 5 = “al-
most always”). Items correspond to six subscales
(self-kindness, self-judgment, common humanity,
isolation, mindfulness, over-identification), but
only the total mean score was used in this study.
A higher score reflects greater self-compassion (see
Introduction).
Coping Strategies Questionnaire (CSQ)
Rosenstiel and Keefe’s (1983) scale [16] in the
Polish adaptation by Juczyński (2001) [36] was
used. It contains 42 items across seven coping
strategies (see Introduction). Respondents answer
using a 7-point scale (0 = “I never do this”; 3 =
“I sometimes do this”; 6 = “I always do this”) to
indicate how often they use each strategy when
in pain. For each strategy, we calculated the mean
score. A higher score reflects more frequent use of
that coping strategy.
The Disease-Related Appraisals Scale
(DRAS)
Janowski, Steuden, Kuryłowicz, and Nieśpia-
łowska-Steuden’s (2009) scale [37] assesses
Table I. Correlations (Pearson’s r) and internal consistency coefficients of the analyzed variables
Variables 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15
1. SelfComp –
2. DivAtten 0.29*** –
3. ReinPaSen 0.30*** 0.49*** –
4. Catastr 0.44*** –0.10 –0.17** –
5. IgnoPaSen 0.22*** 0.38*** 0.61*** –0.31*** –
6. PrayHop 0.09 0.48*** 0.21*** 0.24*** 0.09 –
7. CopSState 0.28*** 0.44*** 0.44*** –0.31*** 0.70*** 0.16** –
8. InBehActiv 0.20*** 0.59*** 0.45*** –0.23*** 0.55*** 0.21*** 0.62*** –
9. Obst/Loss –0.26*** –0.07 –0.03 0.47*** –0.09 0.03 0.21*** –0.16** –
10. Threat –0.36*** –0.11 –0.12 0.49*** –0.01* 0.14* –0.22*** –0.14* 0.77*** –
11. Harm –0.36*** –0.01 –0.06 0.48*** 0.08 0.16** –0.10 –0.09 0.59*** 0.63*** –
12. Value 0.24*** 0.31*** 0.27*** –0.02 0.13* 0.31*** 0.14* 0.18** 0.10 0.08 0.02 –
13. Challen 0.20*** 0.28*** 0.23*** –0.01 0.12* 0.37*** 0.21*** 0.21*** 0.17** 0.25*** 0.16* 0.54*** –
14. Profit 0.14* 0.10 0.18** 0.05 0.01 0.12* –0.09 –0.00 0.26*** 0.17** 0.19** 0.53** 0.30*** –
15. Import –0.25*** –0.11 –0.19** 0.44*** –0.23*** 0.09 –0.18** –0.12 0.52*** 0.65*** 0.46*** –0.08 0.15* –0.06 –
α 0.93 0.82 0.82 0.86 0.82 0.73 0.85 0.70 0.92 0.88 0.86 0.82 0.60 0.72 0.76
SelfComp – Self-compassion, DivAtten – Diverting Attention, ReinPaSen – Reinterpreting Pain Sensations, Catastr – Catastrophizing,
IgnoPaSen – Ignoring Pain Sensations, PrayHop – Praying and Hoping, CopSState – Coping Self-Statements, InBehActiv – Increased
Behavioral Activity, Obst/Loss – Obstacle/Loss, Challen – Challenge, Import – Importance; *p < 0.05; **p < 0.01; ***p < 0.001.
Małgorzata Puchalska-Wasyl, Katarzyna Wikiera
4 Arch Med Sci
ways of perceiving one’s illness. It draws on
Lazarus and Folkman’s [10] transactional stress
model and Lipowski’s [11] concept of illness per -
ception (see Introduction). It contains 47 items
rated on a 5-point scale (“Yes”; “Rather yes”;
“Don’t know”; “Rather no”; “No”). The DRAS in-
cludes six subscales (obstacle/loss, threat, harm,
value, challenge, profit) and a control scale of
Importance, which reflects whether the illness
disturbs life balance or is seen as minor. In this
study, the mean Importance score was 4.26 (SD
= 0.74). Subscale scores were computed as mean
values, with higher scores indicating stronger
perceptions of endometriosis in that category.
Results
Preliminary analyses
First, descriptive statistics were calculated
and the assumption of normality was tested
using the Shapiro-Wilk test. The results indicat-
ed that only the self-compassion score met the
assumption of normality. Therefore, skewness
and kurtosis were further examined. The scores
for catastrophizing (CSQ subscale) and four
subscales of the DRAS – obstacle/loss, threat,
harm, and challenge – were slightly negative-
ly skewed (from –0.20 to –0.86). The remain-
ing subscales exhibited slight positive skew-
ness (from 0.13 to 1.12). All skewness values
fell within the acceptable range of –2 to +2, as
recommended by George and Mallery [38], con-
firming the suitability of parametric tests for
the subsequent analyses. Similarly, although
we found statistically significant deviations
from the normality of residuals, the low skew-
ness and kurtosis values, as well as the Q–Q
plot analysis, suggested that these deviations
were subtle and did not substantially affect the
model’s conclusions.
Second, Pearson’s bivariate correlations and in-
ternal consistency indices were also computed for
all measured variables (Table I).
Regression analyses
The next step involved conducting linear re-
gression analyses using the enter method, which
is employed for exploratory purposes [39]. The
overall self-compassion score and seven pain cop-
ing strategies were simultaneously entered as pre-
dictors, while the categories of perceived illness
(obstacle/loss, threat, harm, value, challenge, and
profit) were sequentially analyzed as dependent
variables. The results are presented in Table II.
The assumption of no multicollinearity among
the predictors was verified. The highest variance
inflation factor (VIF) was 2.672, and the lowest
tolerance value was 0.374, both corresponding
to the pair of variables: ignoring pain sensations
and the dependent variable (obstacle/loss, threat,
harm, value, challenge, and profit).
Regression analyses revealed the extent to
which self-compassion and pain coping strategies
were associated with distinct categories of illness
perception. The explained variance in the study
group ranged from 7% for profit to 26% for threat.
All models showed a good fit.
Perception of illness as obstacle/loss was pos-
itively associated with the catastrophizing strate-
gy, explaining 24% of the variance. A similar pat-
tern was found for threat (26%) and harm (25%).
These two categories were positively associated
with catastrophizing and inversely related to
self-compassion. This demonstrates that negative
illness perception is preceded by intense unpleas-
ant emotions, a sense of helplessness in coping
with pain (catastrophizing), and, in some cases, an
inability to engage in self-care in the face of illness
(self-compassion).
Positive perceptions of illness were associated
with more adaptive strategies. Viewing illness as
value was positively associated with self-compas-
sion, reinterpreting pain sensations, and pray-
ing and hoping, explaining 15% of the variance.
Similarly, self-compassion and reinterpreting pain
sensations were positively associated with, while
Table II. Predicting illness perceptions from self-compassion and coping strategies for pain: a linear regression
analysis
Variable B SE β t P-value
Obstacle/Loss
F(8;256) = 11.22;
p < 0.001;
R2 adj. = 0.236
(Constant) 2.72 0.407 6.69 < 0.001
Self-compassion –0.88 0.103 –0.055 –0.86 0.393
Diverting Attention 0.05 0.071 0.055 0.70 0.487
Reinterpreting Pain Sensations 0.07 0.082 0.062 0.84 0.404
Catastrophizing 0.38 0.053 0.473 7.01 < 0.001
Ignoring Pain Sensations 0.15 0.081 0.166 1.88 0.061
Praying and Hoping –0.08 0.056 –0.090 –1.39 0.167
Coping Self-Statements –0.13 0.072 –0.152 –1.82 0.071
Increased Behavioral Activity –0.08 0.083 –0.080 –1.02 0.309
Illness perception, pain coping, and self-compassion: a cross-sectional study of Polish women with endometriosis
Arch Med Sci 5
Variable B SE β t P-value
Threat
F(8;256) = 12.53;
p < 0.001;
R2 adj. = 0.259
(Constant) 3.61 0.320 11.26 < 0.001
Self-compassion –0.21 0.081 –0.167 –2.64 0.009
Diverting Attention –0.05 0.056 –0.068 –0.88 0.381
Reinterpreting Pain Sensations –0.03 0.07 –0.034 –0.46 0.646
Catastrophizing 0.24 0.042 0.379 5.78 < 0.001
Ignoring Pain Sensations 0.12 0.064 0.155 1.79 0.074
Praying and Hoping 0.08 0.044 0.112 1.74 0.083
Coping Self-Statements –0.11 0.057 –0.152 –1.84 0.066
Increased Behavioral Activity 0.02 0.065 0.024 0.31 0.757
Harm
F(8;256) = 11.77;
p < 0.001;
R
2 adj. = 0.246
(Constant) 2.87 0.374 7.69 < 0.001
Self-compassion –0.34 0.095 –0.225 –3.53 < 0.001
Diverting Attention 0.05 0.065 0.059 0.75 0.455
Reinterpreting Pain Sensations 0.01 0.075 0.012 0.16 0.876
Catastrophizing 0.28 0.049 0.384 5.81 < 0.001
Ignoring Pain Sensations 0.06 0.075 0.066 0.76 0.451
Praying and Hoping 0.05 0.052 0.059 0.91 0.363
Coping Self-Statements 0.03 0.066 0.037 0.44 0.660
Increased Behavioral Activity –0.07 0.076 –0.073 –0.94 0.348
Value
F(8;256) = 6.83;
p < 0.001;
R
2 adj. = 0.150
(Constant) 0.98 0.338 2.91 0.004
Self-compassion 0.21 0.086 0.168 2.49 0.014
Diverting Attention 0.07 0.059 0.097 1.16 0.246
Reinterpreting Pain Sensations 0.15 0.068 0.167 2.13 0.034
Catastrophizing 0.02 0.044 0.027 0.39 0.698
Ignoring Pain Sensations –0.04 0.068 –0.048 –0.52 0.605
Praying and Hoping 0.15 0.047 0.214 3.12 0.002
Coping Self-Statements –0.02 0.060 –0.022 –0.25 0.805
Increased Behavioral Activity 0.01 0.069 0.015 0.19 0.852
Challenge
F(8;256) = 7.38;
p < 0.001;
R
2 adj. = 0.162
(Constant) 2.30 0.266 8.64 < 0.001
Self-compassion 0.12 0.067 0.122 1.81 0.071
Diverting Attention –0.01 0.046 –0.010 –0.125 0.901
Reinterpreting Pain Sensations 0.08 0.054 0.121 1.55 0.122
Catastrophizing 0.01 0.035 0.009 0.13 0.897
Ignoring Pain Sensations –0.08 0.053 –0.129 –1.41 0.161
Praying and Hoping 0.17 0.037 0.308 4.50 < 0.001
Coping Self-Statements 0.07 0.047 0.134 1.53 0.126
Increased Behavioral Activity 0.04 0.054 0.065 0.79 0.431
Profit
F(8;256) = 3.50;
p < 0.001; R
2 adj.
= 0.070
(Constant) 1.53 0.258 5.94 < 0.001
Self-compassion 0.15 0.066 0.157 2.22 0.027
Diverting Attention 0.01 0.045 0.019 0.22 0.830
Reinterpreting Pain Sensations 0.14 0.052 0.218 2.66 0.008
Catastrophizing 0.03 0.034 0.063 0.86 0.392
Ignoring Pain Sensations 0.01 0.052 0.016 0.17 0.868
Praying and Hoping 0.04 0.036 0.076 1.06 0.291
Coping Self-Statements –0.12 0.046 –0.242 –2.63 0.009
Increased Behavioral Activity –0.00 0.052 –0.005 –0.06 0.953
B – unstandardized regression coefficient, SE – standard error, β – standardized regression coefficient, t – result of the t-test, F – result of
the analysis of variance, R²adj. – adjusted R-squared.
Table II. Cont.
Małgorzata Puchalska-Wasyl, Katarzyna Wikiera
6 Arch Med Sci
coping self-statements were negatively associated
with, the perception of illness as profit, explaining
7% of the variance. The first two predictors over -
lap in the perception of illness as value and profit,
suggesting that the perception of benefits from ill-
ness may be related to positive reinterpretation of
pain sensations and understanding one’s suffer -
ing as a communal experience. Additionally, pray-
ing and hoping was associated with the percep-
tion of illness as value. Finally, interpreting illness
as a challenge was associated with the praying
and hoping strategy (R² = 16%).
Discussion
The study aimed to investigate whether
self-compassion and pain-coping strategies were
associated with distinct categories of illness per -
ception in women with endometriosis. Regression
Results
showed that self-care and emotional and
cognitive responses to pain were significantly
associated with how the illness is perceived, in
both negative and positive terms. In addition to
self-compassion, the pain-coping strategies asso-
ciated with illness perception included reinterpret-
ing pain sensations, praying and hoping, coping
self-statements, and catastrophizing. This is con-
sistent with previous studies [29, 40, 41] suggest-
ing that women with endometriosis employ both
adaptive and maladaptive coping strategies in
their daily lives.
Perceiving illness in negative terms – as an ob-
stacle/loss, threat, or harm – was associated with
a catastrophizing strategy. This finding can be in-
terpreted within the Fear-Avoidance Model, which
focuses on the impact of cognitive interpretations
of pain on patients’ emotional and behavioral re-
sponses [42]. According to this model, catastrophic
interpretations of pain – including negative beliefs
about its intensity, duration, and lack of control
over the suffering experienced – may contribute
to increased fear of pain. As a result, pain begins
to be perceived as a signal of danger and poten-
tial damage to the body, which can contribute to
feelings of helplessness and ineffectiveness [43].
Consequently, fear of pain may trigger avoidance
strategies and lead to reduced physical activity,
while also reinforcing excessive focus on somatic
symptoms, creating a vicious circle of increasing
pain and dysfunction [44]. This may lead individu-
als to avoid pain stimuli and focus excessively on
them, potentially triggering greater stress. Empir -
ical research has shown that catastrophizing, fear
of pain, and pain vigilance are associated with
negative affect, anxiety, depression, pain-related
disability, and pain intensity in patients with vari-
ous chronic pain conditions [45]. In the case of en-
dometriosis, which is commonly associated with
chronic pain, this mechanism contributes to per -
ceiving the disease as an obstacle/loss, a threat, or
harm – that is, as an illness that may be perceived
as highly debilitating for everyday functioning.
Poor control over thoughts, dichotomous thinking,
and impaired emotion regulation may contribute
to elevated stress and reduced quality of life [44].
Women may become preoccupied with the losses
and limitations imposed by the illness, which may
reinforce beliefs about its negative impact on their
activities and socio-professional life. This way of
interpreting health experiences hinders the pro-
cess of adaptation to and acceptance of the dis-
ease and may lead to denial of its significance in
the patient’s life.
Negative perceptions of illness, such as threat
and harm, were also linked to lower levels of
self-compassion, which is defined as kindness and
understanding toward oneself and acceptance of
difficult experiences [46]. Self-compassion may be
beneficial for individuals facing illness by poten-
tially facilitating stress management, enhancing
quality of life in chronic conditions [26], and im-
proving emotion regulation in chronic pain, there-
by being associated with reductions in depressive
and anxiety symptoms as well as catastrophic
thinking [25]. Thus, it is conceivable that self-com-
passion may also be positively associated with
both the primary and secondary appraisal of ill-
ness, in line with the transactional model of stress
and coping [10]. Therefore, self-compassion may
represent a potentially relevant target for further
therapeutic research aimed at helping patients
reframe their experiences and reduce the psycho-
logical burden of chronic illness.
Women may perceive endometriosis not only
negatively but also positively, in terms of value (re-
ferring to intangible and spiritual aspects) or profit
(referring to material or social gains). In such cas-
es, self-compassion, combined with cognitive re-
appraisal of pain experiences, may be associated
with more adaptive functioning. Recent research
demonstrates that higher levels of self-compas-
sion and mindfulness are associated with better
psychological well-being, lower psychological dis-
tress, and improved quality of life among women
with endometriosis [47, 48].
In the context of findings highlighting the neg-
ative role of catastrophizing and the positive role
of self-compassion and strategies involving the
reinterpretation of pain sensations, Acceptance
and Commitment Therapy (ACT) appears to pro-
vide a theoretical framework that may be rele-
vant to promoting adaptive functioning in women
experiencing chronic pain due to endometriosis.
Within this approach, self-compassion may play
an important role by facilitating the acceptance of
pain-related thoughts and emotions without ex-
cessive self-criticism, potentially allowing individ-
uals to disengage from experiential avoidance and
Illness perception, pain coping, and self-compassion: a cross-sectional study of Polish women with endometriosis
Arch Med Sci 7
pain catastrophizing. Moreover, ACT emphasizes
cognitive reappraisal of pain sensations, helping
patients reinterpret them as transient internal ex-
periences rather than threats. This combination
of acceptance, self-compassion, and reinterpre-
tation enables engagement in valued life activi-
ties despite ongoing symptoms [49, 50]. Such an
ACT-consistent approach may be particularly rel-
evant for women with endometriosis, for whom
complete elimination of pain is often unattainable.
In a positive perception of illness, the strategy
of praying and hoping also appears to be relevant.
When the illness is perceived as a value, personal
prayer may be associated with inner peace, reflec-
tion on life’s meaning, and a sense of value in suf-
fering. When the disease is seen as a challenge,
prayer may also promote hope and provide sup-
port through the belief that God has control over
one’s illness [51]. Moreover, frequent prayer and
placing hope in God may reflect viewing the ill-
ness not only as a challenge to one’s coping capa-
bilities but also as a test of faith – one believed to
be surmountable through prayer and trust in God.
Understanding the determinants of illness per-
ception, such as self-compassion and pain-coping
strategies, can help clarify factors associated with
a more positive perception of endometriosis. In
particular, developing self-compassion and replac-
ing catastrophizing with cognitive reinterpretation
of pain sensations may be relevant to therapeutic
interventions aimed at supporting women in cop-
ing with their chronic condition.
The findings have important implications for
the comprehensive care of women with endome-
triosis. Given the interconnections between illness
perception, pain-coping strategies, self-compas-
sion, and psychological well-being, routine psy-
chological assessment may be a useful component
of treatment. Regular screening for maladaptive
illness beliefs, pain catastrophizing, and anxiety
may facilitate early identification of patients at
risk of psychological distress and reduced quality
of life, potentially supporting timely intervention.
Furthermore, access to psychological counsel-
ing may be beneficial for women with endome-
triosis. Interventions based on cognitive-behav-
ioral therapy, acceptance-based approaches, and
compassion-focused therapy have been asso-
ciated with reductions in pain catastrophizing,
better emotional regulation, and more adaptive
coping in patients with chronic pain [46, 52, 53].
For women with endometriosis, interventions
promoting self-compassion and cognitive rein-
terpretation of pain, instead of catastrophizing,
may be relevant to addressing maladaptive illness
perceptions, psychological distress, and resilience
[5]. Integrating psychological support into stan-
dard gynecological care may contribute to more
patient-centered care and potentially better long-
term outcomes [54].
The study has several limitations that may
affect the interpretation of the results. First, its
online design limited control over the reliability
of responses, and the considerable number of re-
flective questions may have reduced participants’
attentiveness. Future research should monitor
completion time or include attention-check ques-
tions. Second, the cross-sectional design makes it
difficult to draw causal conclusions. The observed
associations may be bidirectional, highlighting the
need for replication in longitudinal studies to bet-
ter understand the mechanisms underlying illness
perception and coping. Third, for some regression
models, such as the one for profit, R
2 values were
relatively low, indicating limited explained vari-
ance. Combined with a relatively large number of
predictors, this may increase the risk of overfitting.
Consequently, these results should be interpreted
with caution, considering the limited statistical
power and potential risk of Type I errors. Fourth,
clinical variables such as pain intensity, disease
duration, and parental status were not included
in the analyses, although they may be associat-
ed with pain-coping strategies, illness perception,
and adaptation. Additionally, the lack of data on
the mental health history of participants and their
families (e.g., previous therapies, hospitalizations)
limits a full understanding of the relationships un-
der study. Therefore, future research should take
these factors into account.
Funding
No external funding.
Ethical approval
The procedure was approved by the Research
Ethics Committee at the first author’s university
(approval no. KEBN_20/2025).
Conflict of interest
The authors declare no conflict of interest.
References
1. Pettersson A, Berterö CM. How women with endome-
triosis experience health care encounters. Women’s
Health Rep 2020; 1: 529-42.
2. Young K, Fisher J, Kirkman M. Women’s experiences of
endometriosis: a systematic review and synthesis of
qualitative research. J Fam Planning Reprod Health Care
2015; 41: 225-34.
3. Maulenkul T, Kuandyk A, Makhadiyeva D, et al. Under -
standing the impact of endometriosis on women’s life:
an integrative review of systematic reviews. BMC Wom-
en’s Health 2024; 24: 524.
4. Della Corte L, Di Filippo C, Gabrielli O, et al. The burden
of endometriosis on women’s lifespan: a narrative over-
Małgorzata Puchalska-Wasyl, Katarzyna Wikiera
8 Arch Med Sci
view on quality of life and psychosocial wellbeing. Int
J Environ Res Public Health 2020; 17: 4683.
5. Facchin F , Barbara G, Saita E, et al. Impact of endome-
triosis on quality of life and mental health: Pelvic pain
makes the difference. J Psychosom Obstet Gynaecol
2015; 36: 135-41.
6. Kalfas M, Chisari C, Windgassen S. Psychosocial factors
associated with pain and health-related quality of life
in endometriosis: a systematic review. Eur J Pain 2022;
26: 1827-48.
7. Li W, Feng H, Ye Q. Relationship between endometriosis
and mental health: a systematic review and meta-anal-
ysis. Arch Med Sci 2025; 21: 1985-96.
8. Cole JM, Grogan S, Turley E. “The most lonely condition
I can imagine”: psychosocial impacts of endometriosis
on women’s identity. Feminism Psychology 2021; 31:
171-91.
9. Calvi C, Sherman KA, Pham D. Loneliness and perceived
social support in endometriosis: the roles of body image
disturbance and anticipated stigma. Int J Behav Med
2024; 31: 433-44.
10. Lazarus R, Folkman S. Stress, Appraisal and Coping.
Springer 1984.
11. Lipowski Z J. Physical illness, the individual and the cop-
ing processes. Psychiatry Med 1970; 1: 91-102.
12. Barberis N, Cannavò M, Cuzzocrea F , Saladino V , Verrastro
V . Illness perceptions and factors of distress as mediators
between trait emotional intelligence and quality of life in
endometriosis. Psychol Health Med 2023; 28: 1818-30.
13. Spinoni M, Capano AU, Porpora MG, Grano C. Under -
standing the psychological factors linking pelvic pain
and health-related quality of life in endometriosis: the
influence of illness representations and coping strate-
gies. Am J Obstet Gynecol 2025; 233: 54.e1-10.
14. Moore C, Cogan N, Williams L. Illness perceptions
among individuals with endometriosis and their lon-
gitudinal associations with psychological distress and
pain. J Health Psychol 2025; 30: 4284-97.
15. Pavlova M, Noel M, Orr SL, et al. Early childhood risk factors
for later onset of pediatric chronic pain: a multi-method
longitudinal study. BMC Pediatr 2024; 24: 508.
16. Rosenstiel AK, Keefe FJ. The use of coping strategies in
chronic low back pain patients: relationship to patient
characteristics and current adjustment. Pain 1983; 17:
33-44.
17. Leventhal H, Phillips LA, Burns E. The common-sense
model of self-regulation (CSM): a dynamic framework
for understanding illness self-management. J Behav
Med 2016; 39: 935-46.
18. Petrie KJ, Weinman J. Patients’ perceptions of their ill-
ness: the dynamo of volition in health care. Curr Direct
Psychol Sci 2012; 21: 60-5.
19. Woodhouse S, Hebbard G, Knowles SR. Exploring symp-
tom severity, illness perceptions, coping styles, and
well-being in gastroparesis patients using the common
sense model. Dig Dis Sci 2018; 63: 958-65.
20. Zhang M, Nie S, Hai Z, Du Y, Jiang M, Cai C. Effects of
illness perception and coping style on self-management
in peritoneal dialysis patients: a cross-sectional study.
Psychol Res Behav Manag 2024; 17: 3381-93.
21. de Heer EW, Vriezekolk JE, van der Feltz-Cornelis CM.
Poor illness perceptions are a risk factor for depres-
sive and anxious symptomatology in fibromyalgia syn-
drome: a longitudinal cohort study. Front Psychiatry
2017; 8: 217.
22. Pereira MG, Carvalho C, Costa ECV , Leite Â, Almeida V .
Quality of life in chronic pain patients: Illness- and well-
ness-focused coping as moderators. PsyCh J 2021; 10:
283-94.
23. Andysz A, Merecz-Kot D. Predictors of illness accep-
tance in women with endometriosis. Health Psychol Rep
2021; 9: 240-51.
24. Neff KD. Self-Compassion: an alternative conceptualiza-
tion of a healthy attitude toward oneself. Self Identity
2003; 2: 85-101.
25. Wren AA, Somers TJ, Wright MA, et al. Self-compassion
in patients with persistent musculoskeletal pain: rela-
tionship of self-compassion to adjustment to persistent
pain. J Pain Symptom Manag 2012; 43: 759-70.
26. Sirois F , Rowse G. The role of self-compassion in chronic
illness care. J Clin Outcomes Manag 2016; 23: 521-7.
27. Germer CK, Neff KD. Self-compassion in clinical practice.
J Clin Psychol 2013; 69: 856-67.
28. Nasika IN, Wiart C, Bonvarlet AS, Guillaume J, Yavchitz A,
Tereno S. Attachment patterns, self-compassion, and
coping strategies in patients with chronic pain. Pain Rep
2023; 8: e1087.
29. Roomaney R, Kagee A. Coping strategies employed by
women with endometriosis in a public health-care set-
ting. J Health Psychol 2016; 21: 2259-68.
30. Sirois FM, Molnar DS, Hirsch JK. Self-compassion, stress,
and coping in the context of chronic illness. Self Identity
2015; 14: 334.
31. Mistretta EG, Davis MC. Meta-analysis of self-compas-
sion interventions for pain and psychological symptoms
among adults with chronic illness. Mindfulness 2022;
13: 267-84.
32. Orozco-Gómez ÁM, Villamil-Munévar V , Mateus LM,
Morales-Cruz C, Osorio-Noriega R. Pain characteristics,
coping strategies and its relation with the quality of life
in patients with chronic pain diseases. Salud Soc 2016;
7: 240-52.
33. Yuan Y, Schreiber K, Flowers KM, et al. The relationship
between emotion regulation and pain catastrophizing in
patients with chronic pain. Pain Med 2024; 25: 468-77.
34. Neff KD. Self-compassion: theory, method, research, and
intervention. Ann Rev Psychol 2023; 74: 193-218.
35. Kocur D, Flakus M, Fopka-Kowalczyk M. Skala Współczu-
cia dla Samego Siebie (SCS-PL) [Self-Compassion Scale
– Polish version (SCS-PL)]. Przegl Badań Eduk 2022; 37:
1-46.
36. Juczyński Z. Narzędzia pomiaru w promocji i psychologii
zdrowia [Measurement Tools in Health Promotion and
Psychology]. Pracownia Testów Psychologicznych Pol-
skiego Towarzystwa Psychologicznego 2001.
37. Janowski K, Steuden S, Kuryłowicz J, Nieśpiałowska-
Steuden M. The Disease-Related Appraisals Scale: a tool
to measure subjective perception of the disease situa-
tion. Biopsych Aspects Health Dis 2009; 1: 108-25.
38. George D, Mallery M. SPSS for Windows step by step:
a simple guide and reference (17.0 update). Pearson 2010.
39. Tabachnick BG, Fidell LS. Using Multivariate Statistics
(5th ed.). Allyn and Bacon 2007.
40. González-Echevarría AM, Rosario E, Acevedo S, Flores I.
Impact of coping strategies on quality of life of adoles-
cents and young women with endometriosis. J Psycho-
som Obstet Gynecol 2019; 40: 138-45.
41. Zarbo C, Brugnera A, Frigerio L, et al. Behavioral, cog-
nitive, and emotional coping strategies of women with
endometriosis: a critical narrative review. Arch Wom-
en’s Ment Health 2018; 21: 1-13.
42. Vlaeyen JWS, Linton SJ. Fear-avoidance model of chron-
ic musculoskeletal pain: 12 years on. Pain 2012; 153:
1144-7.
Illness perception, pain coping, and self-compassion: a cross-sectional study of Polish women with endometriosis
Arch Med Sci 9
43. Espuig A, Pons-Vinent M, Carbajo E, Lacomba-Trejo L.
The impact of pain, threat perception and emotional
distress on suicide risk in individuals with colorectal
cancer. Nurs Rep 2024; 14: 2629-39.
44. Vlaeyen JWS, Crombez G, Linton SJ. The fear-avoidance
model of pain. Pain 2016; 157: 1588-9.
45. Rogers AH, Farris SG. A meta-analysis of the associ-
ations of elements of the fear-avoidance model of
chronic pain with negative affect, depression, anxiety,
pain-related disability and pain intensity. Eur J Pain
2022; 26: 1611-35.
46. Neff KD, Germer CK. A pilot study and randomized con-
trolled trial of the mindful self-compassion program.
J Clin Psychol 2013; 69: 28-44.
47. Facchin F , Grosso F , Saita E, Vercellini P , Pagnini F. Can
self-compassion and mindfulness predict psychologi-
cal wellbeing in individuals with endometriosis? Find-
ings from an online survey. BMC Womens Health 2025;
25: 310.
48. Van Niekerk L, Johnstone L, Matthewson M. Predictors
of self-compassion in endometriosis: the role of psy-
chological health and endometriosis symptom burden.
Hum Reprod 2022; 37: 264-73.
49. McCracken LM, Vowles KE. Acceptance and commit-
ment therapy and mindfulness for chronic pain: model,
process, and progress. Am Psychol 2014; 69: 178-87.
50. Scott W, McCracken LM. Psychological flexibility, accep-
tance and commitment therapy, and chronic pain. Curr
Opin Psychol 2015; 2: 91-6.
51. Jors K, Büssing A, Hvidt NC, Baumann K. Personal prayer
in patients dealing with chronic illness: a review of the
research literature. Evid Based Complement Alternat
Med 2015; 2015: 927973.
52. Ehde DM, Dillworth TM, Turner JA. Cognitive-behavioral
therapy for individuals with chronic pain: efficacy, inno-
vations, and directions for research. Am Psychol 2014;
69: 153-66.
53. Sturgeon JA. Psychological therapies for the manage-
ment of chronic pain. Psychol Res Behav Manag 2014;
7: 115-24.
54. Fang QY, Campbell N, Mooney SS, Holdsworth-Carson
SJ, Tyson K. Evidence for the role of multidisciplinary
team care in people with pelvic pain and endometriosis:
a systematic review. Austral N Zeal J Obstet Gynaecol
2024; 64: 181-92.
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