Association Between Sexual Orientation and the Impact, Diagnosis, and Treatment of Endometriosis
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Abstract
Purpose: This study examined the association between sexual orientation and the impact, diagnosis, and treatment of endometriosis. Methods: An online survey was conducted in 2023 with 150 adults in the United States diagnosed with endometriosis, 119 of whom identified as heterosexual and 31 with a minority sexual orientation. The impact of endometriosis was measured using the Endometriosis Impact Questionnaire (EIQ), consisting of eight subscales. We also assessed factors related to diagnosis and treatment satisfaction. Data were analyzed using independent samples t -tests and multiple linear regression. Results: Participants with a minority sexual orientation had a higher average impact of endometriosis on the EIQ physical, psychological, and social subscales than heterosexual participants but a lower impact on the fertility subscale, all with medium effect sizes. They took an average of 5 years longer to be diagnosed, with 83.9% of sexual minority versus 45.4% of heterosexual participants receiving at least one misdiagnosis. More sexual minority versus heterosexual participants also reported feeling dismissed or disbelieved (96.8% vs. 64.4%), not feeling listened to by providers (96.8% vs. 62.2%), and having difficulty communicating with providers (90.3% vs. 55.5%). The association between sexual orientation and the EIQ physical, psychological, and social subscales could be explained, in particular, by having been misdiagnosed. Conclusions: These results highlight the need for better medical education and inclusive gynecological care to promote timely diagnosis and treatment of endometriosis. They also suggest that provider biases and discrimination may contribute to a greater impact of endometriosis on sexual minority patients.
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References (28)
- Deep Dyspareunia and Sexual Quality of Life in Women With Endometriosis via openalex
- Diagnosis and management of endometriosis via openalex
- Dysmenorrhea and Endometriosis in Transgender Adolescents via openalex
- Dyspareunia in Their Own Words: A Qualitative Description of Endometriosis-Associated Sexual Pain via openalex
- Endometriosis: advances and controversies in classification, pathogenesis, diagnosis, and treatment via openalex
- Endometriosis: A review of recent evidence and guidelines via openalex
- Endometriosis in transmasculine individuals via openalex
- Health-related quality of life burden of women with endometriosis: a literature review via openalex
- Queering gendered disabilities via openalex
- The Endometriosis Impact Questionnaire (EIQ): a tool to measure the long-term impact of endometriosis on different aspects of women’s lives via openalex
- Transgender and gender diverse people with endometriosis: A perspective on affirming gynaecological care via openalex
- W3002314291 via openalex
- W3125791607 via openalex
- W3193961346 via openalex
- W4387638745 via openalex
- W4393972482 via openalex
- W2044233749 via openalex
- W4401946468 via openalex
- W2075641720 via openalex
- W2124268566 via openalex
- W2293040502 via openalex
- W2318723339 via openalex
- W2554700626 via openalex
- W2883698201 via openalex
- W2887043676 via openalex
- W2922853138 via openalex
- W2987381479 via openalex
- W2998699203 via openalex
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- europepmc
- last seen: 2026-06-04T01:30:01.192114+00:00
- openalex
- last seen: 2026-06-04T00:00:01.174412+00:00
- pubmed
- last seen: 2026-05-29T00:30:59.300374+00:00
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