The International Endogene Study: a collection of families for genetic research in endometriosis. Fertil Steril 2002;78:679–85

Objective: The aim of the International Endogene Study is to discover genes that influence susceptibility to endometriosis. Design: The study brings together two research groups based in Australia and the United Kingdom that independently have been collecting families for linkage analysis and candidate gene studies. Both groups used similar methods to recruit families, obtain clinical notes, assign disease status based on the operative records and available histology, and collect common clinical data including age at onset of symptoms, age at diagnosis, and symptoms experienced.