Are There Effects of Antiretroviral Usage, Caregiver Stigma, Caregiver Burden, and Caregiver Coping on the Quality of Life of Indonesian Children with HIV/AIDS?
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Abstract
Abstract Background Antiretroviral (ARV) therapy has changed human immunodeficiency virus infections and acquired immune deficiency syndrome (HIV/AIDS) into chronic medical conditions. These conditions affect the quality of life of Indonesian children with HIV/AIDS. The aimed was analyzing the influence of ARV usage, caregiver stigma, caregiver burden, and caregiver coping on the quality of life of Indonesian children with HIV/AIDS. Methods Participants in this study were caregiver for Indonesian children with HIV/AIDS. This study measured ARV usage, caregiver stigma, caregiver burden, caregiver coping, and quality of life in Indonesian children with HIV/AIDS. Measurement data were analyzed using logistic regression test and ANOVA, test with p < 0.05. Results HIV/AIDS Indonesian children aged 7.7 ± 3.68 years, with an average participant age of 40.2 ± 11.26 years. Most participants were biological parents of Indonesian children with HIV/AIDS (64.2%) and female (56.6%). Participants stated that all Indonesian children with HIV/AIDS tend to keep their health status confidential. Most HIV/AIDS Indonesian children regularly used ARV (83.0%) and had a good quality of life (71.7%; β = 0.683; p < 0.001). Caregiver stigma value was 21.7 ± 2.06, with a median value of 22 (15–26; β = 0.064; p = 0.548). Participants had moderate and mild caregiver burden, with percentage of 50.9% and 49.1%, respectively (β = 0.058; p = 0.593). Caregiver coping value was 77.2 ± 7.30 (β = -0.196; p = 0.049). Conclusions There is an influence of the use of ARV drugs and caregiver coping with the quality of life of Indonesian children with HIV/AIDS. Regular ARV use improves quality of life, while the higher the caregiver coping, the lower the quality of life.
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