[Rehabilitation goals in discharge reports and in patient questionnaires--on the example of endometriosis patients]

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Discharge reports documented more rehabilitation goals than patient questionnaires, with only 35% congruence between patient-stated and physician-documented goals for endometriosis patients.

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This cross-sectional study analyzed rehabilitation goals documented in medical discharge reports versus those reported by patients via questionnaires among women treated for endometriosis at a rehabilitation center in 2008 and 2009. The researchers found that while more goals were recorded in clinical notes than in patient surveys, there was only a 35% congruence between the two sources, indicating significant discrepancies in how objectives were framed. The authors concluded that current goal-setting processes are overly clinically oriented and suggest implementing prepared lists of potential goals to better align treatment plans with patient expectations and needs. Relevance to endometriosis: This paper is centrally about endometriosis, focusing specifically on the alignment of rehabilitation goals for patients undergoing treatment for this condition.

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Abstract

BACKGROUND: [corrected] The goal orientation of rehabilitation has increasingly found its way in research and practice. Though, shortcomings were ascertained for the implementation into the clinical routine furthermore. An empirical analysis of goal setting in clinical practice should complement the available evidence. METHODS: The study is based on a cross-sectional survey of all endometriosis patients, who had been treated at a rehabilitation center in 2008 or 2009. Data stemmed from the uniform medical rehabilitation discharge reports, and a patient questionnaire, which was sent to the registered women by the clinic routinely before the beginning of the rehabilitation. Data about rehabilita­tion goals were available as free text information for both the discharge reports as well as the pa­tient questionnaires. A category system oriented at the ICF system (International Classification of Functioning, Disability and Health), was developed to structure the goals. RESULTS: 293 patients had provided information concerning their rehabilitation goals, while 69 patients didn’t reply to the question of their rehabilitation goals. The latter were excluded to the analysis. In the discharge reports, altogether, more goals were documented than in the patient questionnaires (5.98 compared to 4.97 goals per patient). In 35% of the numbers of rehabilitation goals clear congruence was found between the data in the discharge reports and the patient questionnaires. CONCLUSION: The results support the assump­tion that the included patients had difficulties in goal-setting. In addition it is obvious that the goals in the discharge reports had little relation to the goals framed by the patients, in language and content. A goal-setting process less oriented towards the medical and clinical needs but more towards the patients needs and expectation would be desirable particularly with regard to a more intensive patient orientation. The implementation of a prepared list of possible rehabilitation goals could serve for the shared goal-setting process in the context of anamnesis.
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Abstract

Backround: The goal orientation of rehabilitation has increasingly found its way in research and practice. Though, shortcomings were ascertained for the implementation into the clinical routine furthermore. An empirical analysis of goal setting in clinical practice should complement the available evidence.

Methods

The study is based on a cross-sectional survey of all endometriosis patients, who had been treated at a rehabilitation center in 2008 or 2009. Data stemmed from the uniform medical rehabilitation discharge reports, and a patient questionnaire, which was sent to the registered women by the clinic routinely before the beginning of the rehabilitation. Data about rehabilitation goals were available as free text information for both the discharge reports as well as the patient questionnaires. A category system oriented at the ICF system (International Classification of Functioning, Disability and Health), was developed to structure the goals.

Results

293 patients had provided information concerning their rehabilitation goals, while 69 patients didn’t reply to the question of their rehabilitation goals. The latter were excluded to the analysis. In the discharge reports, altogether, more goals were documented than in the patient questionnaires (5.98 compared to 4.97 goals per patient). In 35% of the numbers of rehabilitation goals clear congruence was found between the data in the discharge reports and the patient questionnaires.

Conclusion

The results support the assumption that the included patients had difficulties in goal-setting. In addition it is obvious that the goals in the discharge reports had little relation to the goals framed by the patients, in language and content. A goal-setting process less oriented towards the medical and clinical needs but more towards the patients needs and expectation would be desirable particularly with regard to a more intensive patient orientation. The implementation of a prepared list of possible rehabilitation goals could serve for the shared goal-setting process in the context of anamnesis. - Literatur - 1 Buschmann-Steinhage R, Brüggemann S. Veränderungstrends in der medizinischen Rehabilitation der gesetzlichen Rentenversicherung. Bundesgesundheitsbl – Gesundheitsforsch – Gesundheitsschutz 2011; 54: 404-410 - 2 Faller H, Vogel H, Bosch B. Erwartungen von Rehabilitanden hinsichtlich der Methoden und Ergebnisse ihrer Rehabilitation – Eine kontrollierte Studie mit Rückenschmerz- und onkologischen Patienten. Rehabilitation 2000; 39: 205-214 - 3 Faller H. Shared Decision Making: Ein Ansatz zur Stärkung der Partizipation des Patienten in der Rehabilitation. Rehabilitation 2003; 42: 129-135 - 4 Protz W, Gerdes N, Maier-Riehle B et al. Therapieziele in der medizinischen Rehabilitation. Rehabilitation 1998; 37: S24-S29 - 5 Deutsche Rentenversicherung Bund Hrsg Rahmenkonzept zur medizinischen Rehabilitation in der gesetzlichen Rentenversicherung. Berlin: DRV Bund; 2009 - 6 Schliehe F. Zielvereinbarungen in der medizinischen Rehabilitation. Rehabilitation 2009; 48: 127 - 7 Thies S, Leibbrand B, Barth J et al. Individuelle Rehabilitationsziele und Rehabilitationsmotivation in der onkologischen Rehabilitation. Phys Med Rehab Kuror 2008; 18: 318-323 - 8 Farin E, Pollert P, Jäckel W. 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Endometriose – Ein Wegweiser für die Praxis. 2. Aufl. Berlin, New York: De Gruyter; 2011 - 21 Leyendecker G, Kunz G, Kissler S et al. Adenomyosis and reproduction. Best Pract Res Clin Obstet Gynaecol 2006; 20: 523-546 - 22 Schweppe K-W. Endometriose – Eine Erkrankung ohne Lobby. Zentralbl Gynäkol 2003; 125: 233 - 23 Arbeitsgemeinschaft der Wissenschaftlichen Medizinischen Fachgesellschaften . Interdisziplinäre S1-Leitlinie zur Diagnostik und Therapie der Endometriose. AWMF-Leitlinien-Register Nr. 015/045. Erstellungsdatum 05/2010. Düsseldorf: AWMF; 2010 - 24 Eriksen H-L, Gunnersen K, Soerensen J-A et al. Psychological aspects of endometriosis: Differences between patients with or without pain on four psychological variables. European Journal of Obstetrics & Gynecology and Reproductive Biology 2008; 139: 100-105 - 25 Finas D, Hüppe M, Diedrich K et al. Chronischer Unterbauchschmerz am Beispiel der Endometriose – Problempatientin in der Gynäkologie?. Geburtsh Frauenheilk 2005; 65: 156-163 - 26 Siedentopf F. Chronischer Beckenschmerz der Frau aus gynäkologischer Sicht. Urologe 2009; 48: 1193-1198 - 27 Institut und Poliklinik für Medizinische Psychologie UKE, Verband Deutscher Rentenversicherungsträger, Bundesversicherungsanstalt für Angestellte . Peer Review – Checkliste, Manual und Therapieziel-Katalog. Indikationsbereiche Psychische Erkrankungen und Abhängigkeitserkrankungen. Reha-Qualitätssicherungsprogramm der gesetzlichen Rentenversicherung. 7. Aufl. 2004. , verfügbar unter www.sucht.de/alt/ai/ai_3/peer_review.pdf - 28 World Health Organization . International Classification of Functioning Disability and Health. Genf: WHO; 2001 - 29 Lohmann S, Decker J, Müller M et al. The ICF forms a useful framework for classifying individual patient goals in post-acute rehabilitation. Journal of Rehabilitative Medicine 2011; 43: 151-155 - 30 Harty M, Griesel M, von der Merwe A. The ICF as a common language for rehabilitation goal-setting: comparing client and professional priorities. Health and Quality of Life Outcomes 2011; 9: 1-9 - 31 Korell M. Endometriose und Ernährung. Geburtsh Frauenheilk 2011; 71: 694 - 32 Doran G. There’s a S.M.A.R.T. way to write management's goals and objectives. Management Review 1981; 70: 35-36 - 33 Brandes I, Niehues C. Endometriose-Patientinnen in einer gynäkologischen Rehabilitationsklinik. Phys Med Rehab Kuror 2011; 21: 227-233 - 34 Zimmermann A, Brandes I, Babitsch B. Informationsbedürfnisse und fehlendes Krankheitswissen von Frauen mit Endometriose. Geburtsh Frauenheilk 2009; 70: 568-573 - 35 Rosewilliam S, Roskell C, Pandyan A. A systematic review and synthesis of the quantitative and qualitative evidence behind patient-centered goal setting in stroke rehabilitation. Clinical Rehabilitation 2011; 25: 501-514 - 36 Stineman M, Strasser D. Team Process and Effectiveness: Patients, Families, and Staff Characteristics. Top Stroke Rehabil 1997; 4: 21-33

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Condition tags

endometriosis

MeSH descriptors

Endometriosis Endometriosis Outcome Assessment, Health Care Patient Care Planning Patient Discharge Summaries Patient Participation Surveys and Questionnaires Adult Endometriosis Female Germany Humans Middle Aged Motivation Outcome Assessment, Health Care Patient Acceptance of Health Care Patient Acceptance of Health Care Patient Care Planning Patient Discharge Summaries Patient Participation

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