"Yeah, But Can It Kill You?" Understanding Endometriosis in the Atlanta Area

Amanda Day
In: Anthropology Theses · 2022 · doi:10.57709/3489599 · W754511592
article OA: green CC0 ⤵ 1 in-corpus citation
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⚙ AI-generated summary by gemini-2.5-flash-lite, 2026-06-06 ⓘ

This study explored how women in the Atlanta area with endometriosis, drawing on biomedical understanding and narrative accounts, experience distinct phases of discovery, quest, and revelation in their coping mechanisms.

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This paper explores how women with endometriosis in the Atlanta area understand and discuss the condition, combining biomedical framing with concepts of epistemological community, autoethnography, and narratives of sufferers. Using individual interviews, a focus group, and analysis of medical and social science literature, it finds that women from different socioeconomic backgrounds describe and cope with endometriosis in distinct ways, with coping unfolding through three phases: discovery, quest, and revelation. A key limitation is that the study relies on qualitative accounts and interpretation rather than establishing medical mechanisms or prevalence. This paper is centrally about endometriosis — it examines how sufferers in the Atlanta area form communities and experience coping over time.

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Abstract

This paper contributes to a growing body of literature on women with endometriosis, a gynecological condition in which tissue similar to the endometrium, or lining of the uterus which is shed during menses, grows elsewhere in the body. Despite a growing understanding of the disease in medical literature, it is still not well known by the general population or fully understood by the medical community. The paper incorporates a biomedical understanding with Emma Whelan?s idea of these women as an epistemological community, autoethnography, and narratives of sufferers in order to understand how women discuss, experience, and form communities around it. It draws upon individual interviews, a focus group, and readings of medical and social science literature and found that women of dissimilar socioeconomic backgrounds approached and discussed the disease distinctively from one another with three phases of coping with the illness: the discovery, quest, and revelation.
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"Yeah, But Can It Kill You?" Understanding Endometriosis in the Atlanta Area Day, Amanda Citations Abstract This paper contributes to a growing body of literature on women with endometriosis, a gynecological condition in which tissue similar to the endometrium, or lining of the uterus which is shed during menses, grows elsewhere in the body. Despite a growing understanding of the disease in medical literature, it is still not well known by the general population or fully understood by the medical community. The paper incorporates a biomedical understanding with Emma Whelan’s idea of these women as an epistemological community, autoethnography, and narratives of sufferers in order to understand how women discuss, experience, and form communities around it. It draws upon individual interviews, a focus group, and readings of medical and social science literature and found that women of dissimilar socioeconomic backgrounds approached and discussed the disease distinctively from one another with three phases of coping with the illness: the discovery, quest, and revelation.

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endometriosis

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