Abstract
Endometriosis is a common condition with primary symptoms being abdominal pain and infertility. The diagnostic delay is approximately 10 years, multifactorial, and has consequences on the quality of life of patients. Objective: to study the role of the general practitioner in the initial care path of endometriosis patients. We conducted a retrospective study among patients in the LowerNormandy region with a confirmed diagnosis of endometriosis using a self-questionnaire. 48 responses wereanalyzed. The average total diagnostic delay was 10.3 years from the onset of the first symptoms. This delaywas divided into 4.9 years between the first symptoms and the first consultation, and 5.1 years thereafter untilthe diagnostic confirmation. 46.8% of patients consulted their general practitioners first for endometriosissymptoms. For 54.2%, their general practitioners did not practice gynecology. However, the diagnostic delaywas shorter by 4.8 years (p=0.0337) if the general practitioner practiced gynecology. The diagnostic delay wassignificantly extended by 9 years in patients whose symptoms began before 18 years old (p=0.0001). Finally,68.1% of patients were not satisfied with their care path, and 62.5% of the total sample sought alternativemedicines. The general practitioner, as the first point of contact, should be better trained for improvedendometriosis management, especially in adolescents. It is necessary to clarify the care path to facilitatecoordination by the general practitioner and promote multidisciplinarity and supportive care to enhance thequality of life of patients.
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