Pre- and Post-Operative Exercise Protocol for Infants with Tongue-Tie: Clinical and Caregiver Perspectives

Purpose: Ankyloglossia or tongue-tie (TT) occurs when the lingual frenulum is visually altered and accompanied by restricted tongue mobility causing feeding and other difficulties with infants. Pre- and post-operative care is reported to be effective to prevent tissue reattachment and ensure feeding success. The purpose of this study was to obtain feedback and insights from caregivers and health professionals for an evidence-based pre- and post-operative exercise protocol for breastfeeding infants undergoing surgical management for TT. Methods: A qualitative approach was used to evaluate an evidence-based pre- and post-operative exercise protocol for infants with TT, through virtual semi-structured interviews with healthcare professionals and caregivers of children with TT. Five caregivers and eight current practicing clinicians were interviewed to obtain feedback on the protocol. Results were analysed using thematic analysis. Results: Four themes were generated from participants: 1) Parental confidence and competence; 2) The need for individualised and adaptable instruction; 3) Supporting the caregiver and infant equally; and 4) Regular and periodic support and adjustment to protocol. Conclusion: Key findings from the qualitative interviews included: fostering parental confidence and education; adaptability and flexibility in care; and clinician reassurance throughout the process. Participants suggested these factors would contribute to greater adherence to care protocols and improved outcomes for both infants and their families. This research emphasizes the importance of providing care that extends beyond exercise logistics, and instead, recommends a mindful, family-centred approach that empowers and motivates caregivers throughout the process.