"I didn't need to know that!" : the regulation of women with endometriosis : a thesis presented in partial fulfilment of the requirements for the degree of Master of Science in Psychology (endorsement in Health Psychology) at Massey University, Wellington, New Zealand

Tasha Lee Westeneng
2019 · W3014101042
dissertation OA: gold CC0
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This thesis utilizes a feminist post-structuralist framework to analyze online illness narratives from women with endometriosis, specifically examining how societal discourses shape their experiences. The research identifies that these women are regulated by constructs of Ideal Femininity, which impose expectations of silence and sacrifice, as well as discourses of Legitimation that involve body dismissal. These findings indicate that dominant representations of the female body limit women’s perceived control over their health conditions. This paper is centrally about endometriosis — it explores the psychosocial regulation of women’s bodies through cultural discourse rather than clinical pathology.

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Abstract

Endometriosis is a condition that primarily affects women of reproductive age and has the potential to impact upon every facet of women’s lives. The relevance of gender to endometriosis is frequently acknowledged within the literature, although only a small number of studies have taken a gendered and critical stance to the topic. Using online illness narratives in the form of blog posts, this study uses a feminist post-structuralist perspective to explore how women construct their endometriosis experiences, drawing upon discourses that regulate the female body. This study found that women are regulated by discourses of Ideal Femininity, which encompasses discursive constructions of ‘silencing’, ‘sacrifice’, and a ‘disordered body’. Discourses of Legitimation involves the construction of an ‘open body’ and ‘dismissal’. These finding suggest that women with endometriosis have limited control over their bodies due to the negative and dominant representations of the female body. Therefore, representations of the female body should be considered when positioning endometriosis as an individual and pathologised issue for women. It is imperative that we challenge discourses that position women as responsible for their condition by way of being female and where endometriosis is constructed as a reproductive disorder; this could go some way to address the unjust social power relations that govern women’s bodies.
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"I didn't need to know that!" : the regulation of women with endometriosis : a thesis presented in partial fulfilment of the requirements for the degree of Master of Science in Psychology (endorsement in Health Psychology) at Massey University, Wellington, New Zealand Loading... Date DOI Open Access Location Authors Journal Title Journal ISSN Volume Title Publisher Massey University Rights The Author Abstract Endometriosis is a condition that primarily affects women of reproductive age and has the potential to impact upon every facet of women’s lives. The relevance of gender to endometriosis is frequently acknowledged within the literature, although only a small number of studies have taken a gendered and critical stance to the topic. Using online illness narratives in the form of blog posts, this study uses a feminist post-structuralist perspective to explore how women construct their endometriosis experiences, drawing upon discourses that regulate the female body. This study found that women are regulated by discourses of Ideal Femininity, which encompasses discursive constructions of ‘silencing’, ‘sacrifice’, and a ‘disordered body’. Discourses of Legitimation involves the construction of an ‘open body’ and ‘dismissal’. These finding suggest that women with endometriosis have limited control over their bodies due to the negative and dominant representations of the female body. Therefore, representations of the female body should be considered when positioning endometriosis as an individual and pathologised issue for women. It is imperative that we challenge discourses that position women as responsible for their condition by way of being female and where endometriosis is constructed as a reproductive disorder; this could go some way to address the unjust social power relations that govern women’s bodies.

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