Material shifts: theorizing endometriosis, embodiment, and experimental art

McKenna, Emma, Justus Liebig University Giessen
2021 · doi:10.22029/jlupub-7138 · W6907582467
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This article employs autotheory and experimental textile art to narrate endometriosis symptoms, positioning chronic illness as a disability to argue for the worthiness of non-normative female embodiment.

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This article employs autotheory to explore the narrative modes required for a body altered by chronic illness, specifically focusing on the author’s personal experience with endometriosis. The author engages with feminist disability scholarship that frames endometriosis as a disability and examines the socioeconomic implications of this classification within academic settings. By utilizing an experimental arts-based practice and textiles to depict pain episodes, the work advocates for the inherent worthiness of non-normative female embodiment through a disability art aesthetic. This paper is centrally about endometriosis — specifically using artistic expression to theorize embodiment and challenge normative narratives of the condition.

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Abstract

A body changed by illness demands new narrative modes. In this article, I use autothe-ory to foreground my experience of struggling with symptoms of endometriosis. I enter into conversation with feminist disability scholars who have theorized chronic illness and endometriosis as a disability, and think through some of the socio-eco-nomic effects of doing so, particularly within academia. I examine how an experi-mental arts-based practice can be a method of narrating chronic illness. Situated within a disability art aesthetic, I use textiles to represent a chronic pain episode. These images argue for the inherent worthiness of non-normative female embodiment.
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Material shifts: theorizing endometriosis, embodiment, and experimental art Loading... Date Authors Advisors/Reviewers Further Contributors Contributing Institutions Publisher Journal Title Journal ISSN Volume Title Publisher License Quotable link DOI: http://dx.doi.org/10.22029/jlupub-7138Abstract A body changed by illness demands new narrative modes. In this article, I use autothe-ory to foreground my experience of struggling with symptoms of endometriosis. I enter into conversation with feminist disability scholars who have theorized chronic illness and endometriosis as a disability, and think through some of the socio-eco-nomic effects of doing so, particularly within academia. I examine how an experi-mental arts-based practice can be a method of narrating chronic illness. Situated within a disability art aesthetic, I use textiles to represent a chronic pain episode. These images argue for the inherent worthiness of non-normative female embodiment.Link to publications or other datasets Description Notes Original publication in On_culture: the open journal for the study of culture 11 (2021)

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endometriosis

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