Mulheres convivendo com endometriose: percepções sobre a doença

Érica Luiza De Abreu Ramos, Vanessa Moreira da Silva Soeiro, Cláudia Teresa Frias Rios
In: Ciência & Saúde · 2018 · vol. 11(3) , pp. 190 · doi:10.15448/1983-652x.2018.3.28681 · W2897842133
article OA: diamond CC0 ⤵ 3 in-corpus citations
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⚙ AI-generated summary by claude@2026-06, 2026-06-06 ⓘ

This study explored women's knowledge of endometriosis and their perceptions of quality of life post-diagnosis, finding most participants had limited understanding of the disease and viewed its impact negatively.

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⚙ AI-generated deep summary by claude@2026-06, 2026-06-06 ⓘ

This qualitative exploratory descriptive study investigated the knowledge and perceptions about quality of life after diagnosis among 13 women aged 18 to 46 years followed in a university hospital’s Pelvic Pain and Endometriosis service. Most participants reported a 1–4 year disease duration, belonged to the middle class, used contraceptive methods, had no infertility diagnosis, had irregular menstrual cycles, and had a history of prior pregnancy with many reporting abortions. The key finding was that most women did not know the disease affecting them and reported living with pain and the possibility of infertility, perceiving changes from the disease negatively. Limitations were that the study’s small, single-setting sample limits generalizability beyond these participants. This paper is centrally about endometriosis — it examines women’s perceptions and knowledge of endometriosis and how they experience quality of life after diagnosis.

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Abstract

Objetivos: Identificar o conhecimento de mulheres que convivem com endometriose a respeito da doença e ponderar suas percepções sobre a qualidade de vida pós-diagnóstico.Materiais e Métodos: Estudo exploratório, descritivo, qualitativo, realizado no Setor de Dor Pélvica e Endometriose do Serviço de Obstetrícia e Ginecologia de um hospital universitário. Participaram da pesquisa 13 mulheres com idade entre 18 e 46 anos.Resultados: A maioria das mulheres pertencia à faixa etária entre 30 a 39 anos, com tempo de doença entre 1 a 4 anos, pertencentes à média classe-média, em uso de método contraceptivo, sem diagnóstico de infertilidade, com ciclo menstrual irregular e com histórico pregresso de gravidez (a maioria com abortos). As participantes da pesquisa não conhecem a doença que lhes aflige, vivem em companhia da dor e da possível infertilidade.Conclusões: As mulheres incluídas nesta pesquisa, em sua maioria, não conhecem a doença com a qual convivem e percebem as mudanças advindas da doença de forma negativa.

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