Impact of endometriosis on partners: Results from the French EndoVie survey

OBJECTIVES: To study the impact of endometriosis on women's partners and evaluate the partners' perceptions and experiences. STUDY DESIGN: Between January 21 and 28, 2020, a prospective cross-sectional web-based survey was conducted among partners of women suffering from endometriosis. The investigated sample group (n = 100) was taken from a targeted population among the Ipsos Access panel that collects data from 235,171 French subjects. The online questionnaire aimed to assess the impact of endometriosis on partners' well-being and daily life on a scale of 0 to 10 (where 0 represents very low impact and 10 represents very high impact). RESULTS: The survey included 92 men and 8 women. Most of them (78 %) were at least 45 years of age and had been in a relationship for over 13 years (63 %). For 75 %, the diagnosis of endometriosis was made after the relationship had begun. At the time of endometriosis diagnosis, the dominant partners' feelings were concern, understanding, and compassion; however, 17 % also reported negative feelings. The average ratings for the impact of endometriosis on sexual relations and the couple's life were 4.2 ± 3.2 out of 10 and 3.6 ± 2.8 out of 10, respectively. The psychological impact, impact on leisure, and impact on relationships with friends and family were less significant. Endometriosis was also found to impact partners' emotions: 26 % reported that they did not often/very often understand the expectations of their partners when they underwent endometriosis-associated pain and 19 % reported feeling guilty about blaming their partner because of endometriosis. CONCLUSION: This data provides new insights regarding the impact of endometriosis on partners of women suffering from the condition and highlights the importance of counselling in the management of endometriosis.