Abstract
Background: Endometriosis is a prolonged gynecological disease that causes a lot of pain during menstruation and affects many aspects of the person’s life. The disease occurs in approximately 10 percent of the fertile women worldwide, making it a public health problem. Despite that, it takes a long time to get the right diagnosis and treatment. Nurses meet women with endometriosis in various contexts and thus have an important role in supporting and advocating for women’s health and rights. Aim: To illustrate how women with endometriosis experience healthcare encounter. Method: 11 scientific articles with a qualitative approach have been synthesized using thematic analysis. Results: Two main themes were identified: Feeling of powerlessness and alienation and Feeling of hope. Women with endometriosis had mainly negative experiences of the treatment due to the healthcare professional’s lack of knowledge and understanding of the disease. The results also showed that care meetings that were characterized by respect, knowledge and compassion led to positive experiences for the women. Conclusion: Women with endometriosis need greater attention both in healthcare but also in the general public. Knowledge, adequate treatment, understandable communication and patient participation are a basic prerequisite for more holistic and equal care.
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