Patient engagement, quality of life and chronic pain: A cross-sectional study on endometriosis

Monica Ahmad, Cristina Sechi, Stefano Guerriero, Marco Guicciardi, Laura Vismara
Journal of health psychology · 2025 · vol. 30(8) , pp. 1990–2000 · doi:10.1177/13591053241302134 · PMID:39628115
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⚙ AI-generated summary by claude@2026-06, 2026-06-10 ⓘ

This cross-sectional study of 354 women found that patient engagement partially mediates the negative impact of chronic pain on quality of life in endometriosis patients.

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⚙ AI-generated deep summary by claude@2026-06, 2026-06-10 · read from full text ⓘ

This cross-sectional study investigated how patient engagement relates to quality of life and chronic pain in people with endometriosis, using survey-based measures to characterize these psychosocial and pain outcomes at a single time point. The study’s main finding was that patient engagement was associated with differences in chronic pain and quality-of-life scores within the endometriosis population. A key caveat is that the cross-sectional design limits conclusions about directionality or causality between engagement, pain, and quality of life. This paper is centrally about endometriosis — it examines patient engagement, quality of life, and chronic pain in individuals with endometriosis.

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Abstract

Endometriosis is a chronic condition affecting approximately 1 in 10 women of childbearing age, significantly impacting their daily lives, mental health, and quality of life. This study explores the relationship between chronic pain, patient engagement, and quality of life among women with endometriosis. Utilizing a sample of 354 women the study employed the WHOQOL-BREF, Patient Health Engagement Scale, and Numerical Pain Rating Scale to measure QoL, engagement, and pain intensity, respectively. Results indicated significant correlations between chronic pain and reduced QoL, as well as between higher patient engagement and improved QoL. Structural equation modeling revealed that patient engagement partially mediates the negative impact of chronic pain on QoL, suggesting that active involvement in health management can mitigate some adverse effects of chronic pain. These findings underscore the importance of patient engagement in enhancing QoL and managing endometriosis, highlighting the need for tailored interventions to foster proactive health management among affected women.
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Data availability statement Article versions Authors Metrics and citations Metrics Journals metrics This article was published in Journal of Health Psychology. View All Journal MetricsPublication usage* Total views and downloads: 531 *Publication usage tracking started in December 2016 Altmetric See the impact this article is making through the number of times it’s been read, and the Altmetric Score. Learn more about the Altmetric Scores Publications citing this one Receive email alerts when this publication is cited Web of Science: 1 view articles Opens in new tab Crossref: 1 - Medical and psychosocial influences on quality of life in endometriosis: A holistic narrative review Figures and tables Figures & Media Tables View Options Access options If you have access to journal content via a personal subscription, university, library, employer or society, select from the options below: loading institutional access options Alternatively, view purchase options below: Purchase 24 hour online access to view and download content. Access journal content via a DeepDyve subscription or find out more about this option.

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Condition tags

mesh:D004715endometriosis

MeSH descriptors

Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain Chronic Pain

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