A 12-month follow-up study of self-management training for people with chronic disease: are changes maintained over time?

J H Barlow, Barlow JH, Wright CC, C C Wright, A P Turner, Turner AP, Bancroft GV, G V Bancroft
British journal of health psychology · 2005 · vol. 10(Pt 4) , pp. 589–99 · doi:10.1348/135910705X26317 · PMID:16238867
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This 12-month follow-up study found that improvements in self-efficacy, self-management behaviors, and health status seen at 4 months after a chronic disease self-management course were maintained.

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This 12-month follow-up study evaluated whether improvements from a lay-led chronic disease self-management course were sustained over time among 171 participants in the UK. The cohort, with a mean age of 54 and an average disease duration of 16 years, included individuals with conditions such as diabetes, osteoporosis, and endometriosis. Results indicated that significant gains in self-efficacy, symptom management, and mood observed at four months remained stable at twelve months, with interview data confirming continued use of learned techniques. Relevance to endometriosis: listed as one condition within the broader chronic disease population studied for self-management training outcomes.

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Abstract

OBJECTIVE: A previous study reported some improved outcomes at 4-month follow-up after attendance on a lay-led, chronic disease self-management course (CDSMC). The purpose of this study was to determine whether changes were maintained over time (i.e. at 12 months) and to describe participants' current use of self-management techniques. DESIGN: The study was a 12-month follow-up of a sample of 171 participants who attended a CDSMC in the UK. METHOD: Data were collected by self-administered questionnaires mailed to participants 12 months after they commenced a CDSMC and via telephone interviews with a sub-sample. RESULTS: The sample had a mean age of 54 years, mean disease duration of 16 years, 73% were women, and chronic diseases included endometriosis, depression, diabetes, myalgic encephalomyelitis, osteoporosis and polio. The significant improvements in outcomes identified at 4 months (i.e. cognitive symptom management, self-efficacy, communication with physician, fatigue, anxious and depressed moods and health distress) were sustained at 12 months. No significant changes between 4- and 12-month assessments were found on any study variables. Interview data confirmed that participants continued to use some of the self-management techniques learned on the course. CONCLUSION: Attendance on the CDSMC may lead to longer-term changes in key outcomes such as self-efficacy, use of some self-management behaviours and some aspects of health status (e.g. fatigue, depressed mood).
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Abstract

Objective. A previous study reported some improved outcomes at 4-month follow-up after attendance on a lay-led, chronic disease self-management course (CDSMC). The purpose of this study was to determine whether changes were maintained over time (i.e. at 12 months) and to describe participants' current use of self-management techniques. Design. The study was a 12-month follow-up of a sample of 171 participants who attended a CDSMC in the UK. Method. Data were collected by self-administered questionnaires mailed to participants 12 months after they commenced a CDSMC and via telephone interviews with a sub-sample. Results. The sample had a mean age of 54 years, mean disease duration of 16 years, 73% were women, and chronic diseases included endometriosis, depression, diabetes, myalgic encephalomyelitis, osteoporosis and polio. The significant improvements in outcomes identified at 4 months (i.e. cognitive symptom management, self-efficacy, communication with physician, fatigue, anxious and depressed moods and health distress) were sustained at 12 months. No significant changes between 4- and 12-month assessments were found on any study variables. Interview data confirmed that participants continued to use some of the self-management techniques learned on the course. Conclusion. Attendance on the CDSMC may lead to longer-term changes in key outcomes such as self-efficacy, use of some self-management behaviours and some aspects of health status (e.g. fatigue, depressed mood). Design. The study was a 12-month follow-up of a sample of 171 participants who attended a CDSMC in the UK. Method. Data were collected by self-administered questionnaires mailed to participants 12 months after they commenced a CDSMC and via telephone interviews with a sub-sample. Results. The sample had a mean age of 54 years, mean disease duration of 16 years, 73% were women, and chronic diseases included endometriosis, depression, diabetes, myalgic encephalomyelitis, osteoporosis and polio. The significant improvements in outcomes identified at 4 months (i.e. cognitive symptom management, self-efficacy, communication with physician, fatigue, anxious and depressed moods and health distress) were sustained at 12 months. No significant changes between 4- and 12-month assessments were found on any study variables. Interview data confirmed that participants continued to use some of the self-management techniques learned on the course. Conclusion. Attendance on the CDSMC may lead to longer-term changes in key outcomes such as self-efficacy, use of some self-management behaviours and some aspects of health status (e.g. fatigue, depressed mood). | Original language | English | |---|---| | Pages (from-to) | 589-599 | | Journal | British Journal of Health Psychology | | Volume | 10 | | Issue number | 4 | | DOIs | | | Publication status | Published - Nov 2005 | Bibliographical note The full-text of this item is not yet available from this repository.UN SDGs This output contributes to the following UN Sustainable Development Goals (SDGs) - SDG 3 Good Health and Well-being

Keywords

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Condition tags

endometriosis

MeSH descriptors

Chronic Disease Patient Education as Topic Patient Education as Topic Self Care Activities of Daily Living Activities of Daily Living Activities of Daily Living Activities of Daily Living Adaptation, Psychological Adaptation, Psychological Adult Adult Aged Aged Chronic Disease Chronic Disease Chronic Disease Female Female Follow-Up Studies

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