A Systematic Scoping Review on Recruiting and Retaining Seldom Heard Families in Longitudinal Qualitative Research

The aim of this scoping review was to systematically scope the existing literature on the best practice in how to design and conduct longitudinal qualitative research that works for, and is welcomed by two seldom heard kinds of families: (a) families in which a child has a learning disability of chromosomal or genetic origin (sub-review 1); and (b) families in which a parent has experienced violence or abuse from a partner in the last year (sub-review 2). Research questionsRQ1 What challenges and elements of best practice can be found in the design and conduct of longitudinal and cross-sectional descriptive studies with hard to reach and hard to hear families? RQ 2. What evidence is there of successful strategies for overcoming these challenges?