Analysis of online surveys on endometriosis-symptoms, effects of treatment and how to treat the patient to cope with the disease

Adriana Misiło, Monika Sosna, Krzysztof Mordoń
In: Journal of Education, Health and Sport · 2023 · vol. 20(1) , pp. 104–113 · doi:10.12775/jehs.2023.20.01.011 · W4384815838
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⚙ AI-generated summary by claude@2026-06, 2026-06-12 ⓘ

This paper presents results from an online survey of women with endometriosis concerning disease awareness, treatment methods, and coping strategies.

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The paper summarizes results of an online survey (January–March 2020) designed to assess awareness of endometriosis, experiences with treatments, symptom burdens, and coping strategies among women recruited through internet groups for those with endometriosis. It frames endometriosis as a chronic inflammatory condition that affects pelvic organs, contributes to decreased quality of life, and is associated with fertility problems. The key finding reported in the article is that the survey was used to gather information on patients’ perceptions of symptoms and treatment effects, but no specific quantitative outcomes are included in the provided text. This paper is centrally about endometriosis — it reports on an online survey examining endometriosis symptoms, treatment effects, and patient coping.

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Abstract

Endometriosis is a complex disease syndrome characterized by chronic inflammation affecting mainly the pelvic organs. The etiopathogenesis is not fully understood. In the course of trying to understand the mechanisms that lead to the development of endometriosis, many hypotheses have been put forward, such as the theory of retrograde blood flow or the theory of metaplasia and induction. Endometriosis is the cause of many ailments and deterioration of the quality of life. In addition, it is an important factor in problems with getting pregnant and infertility. This paper is the summary of the survey results. The aim of the study to collect information of the awareness of the disease, methods of treatment and coping with ailments. The study was conducted via an online survey in the period from January to March 2020. The generated link [1], redirecting directly to the survey was placed on internet groups that gather women struggling with endometriosis. The results of the survey are presented below.
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Analysis of online surveys on endometriosis-symptoms, effects of treatment and how to treat the patient to cope with the disease DOI: https://doi.org/10.12775/JEHS.2023.20.01.011Keywords endometriosis, quality of life, aliments, chronic diseaseAbstract Endometriosis is a complex disease syndrome characterized by chronic inflammation affecting mainly the pelvic organs. The etiopathogenesis is not fully understood. In the course of trying to understand the mechanisms that lead to the development of endometriosis, many hypotheses have been put forward, such as the theory of retrograde blood flow or the theory of metaplasia and induction. Endometriosis is the cause of many ailments and deterioration of the quality of life. In addition, it is an important factor in problems with getting pregnant and infertility. This paper is the summary of the survey results. The aim of the study to collect information of the awareness of the disease, methods of treatment and coping with ailments. The study was conducted via an online survey in the period from January to March 2020. The generated link [1], redirecting directly to the survey was placed on internet groups that gather women struggling with endometriosis. The results of the survey are presented below. References https://docs.google.com/forms/d/e/1FAIpQLSdmz8tET2A9DWvrYQ5TXaoKYq9UQEZwGC_E-OiHz5KeAdL--g/viewform Vercellini P, Viganò P, Somigliana E, Fedele L. Endometriosis: pathogenesis and treatment. Nat Rev Endocrinol. 2014;10(5):261–275. Bulun SE, Yilmaz BD, Sison C, Miyazaki K, Bernardi L, Liu S, Kohlmeier A, Yin P, Milad M, Wei J. Endometriosis. Endocr Rev. 2019 Aug 1;40(4) Zondervan KT, Becker CM, Missmer SA. Endometriosis. N Engl J Med2020;382:1244-56. doi:10.1056/NEJMra1810764 pmid:32212520 Rolla E. Endometriosis: advances and controversies in classification, pathogenesis, diagnosis, and treatment. F1000Res. 2019 Apr 23;8 Koninckx PR, Fernandes R, Ussia A, Schindler L, Wattiez A, Al-Suwaidi S, Amro B, Al-Maamari B, Hakim Z, Tahlak M. Pathogenesis Based Diagnosis and Treatment of Endometriosis. Front Endocrinol (Lausanne). 2021 Nov 25;12 Schindler L, Schindler S, Ussia A, Gordts S, Wattiez A, Koninckx PR. Cystic Ovarian Endometriosis and Infertility: Arguments for an Early But Less Aggressive Surgical Treatment. Obstet Gynecol Int J (2020) 11:122–5 Gordts S, Campo R. Modern Approaches to Surgical Management of Endometrioma. Best Pract Res Clin Obstet Gynaecol (2019) 59:48–55. Taylor HS, Kotlyar AM, Flores VA. Endometriosis is a chronic systemic disease: clinical challenges and novel innovations. Lancet. 2021 Feb 27;397(10276):839-852. Zondervan KT, Becker CM, Missmer SA. Endometriosis. N Engl J Med. 2020 Mar 26;382(13):1244-1256. Kalaitzopoulos DR, Samartzis N, Kolovos GN, Mareti E, Samartzis EP, Eberhard M, Dinas K, Daniilidis A. Treatment of endometriosis: a review with comparison of 8 guidelines. BMC Womens Health. 2021 Nov 29;21(1):397. Downloads Published How to Cite Issue Section License Copyright (c) 2023 Adriana Misiło, Monika Sosna, Krzysztof Mordoń This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License. The periodical offers access to content in the Open Access system under the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 Stats Number of views and downloads: 572 Number of citations: 0

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