Lived Experiences of Caregivers of Paediatric Patients Diagnosed with Cancer at Mbarara Regional Referral Hospital, Mbarara district, Uganda: A qualitative study

Abstract Background Psychosocial and economic hardships represent a constant challenge for those living with children diagnosed with cancer. Biomedical implications for paediatric patients and caregiving add to their distress. The purpose of this study was to explore the lived experiences of caregivers of paediatric patients diagnosed with cancer at Mbarara Regional Referral Hospital (MRRH). Methods This was a qualitative study in which in-depth interviews with 10 purposively selected paediatric caregivers at the oncology unit of MRRH were conducted. The data were analysed via thematic content analysis. Results The majority of the caregivers enrolled in the study were mothers of pediatric patients, whereas a few were fathers and siblings (sisters). The lived experiences of the caregivers were grouped under different themes, each with subthemes. Psychological distress as a result of the cancer diagnosis and its treatment modalities, with subthemes of confusion, depression, social isolation and financial strain. Satisfaction with healthcare providers’ practices is a theme. Sociocultural beliefs with subthemes of misconceptions and myths. Coping strategies as a theme with the subthemes of sharing care, seeking divine intervention and making sacrifices. Conclusions This study highlights some of the psychosocial and financial needs of caregivers of paediatric patients with cancer at MRRH, highlighting the need for holistic care involving paediatric cancer patients and their caregivers.