Translating Evidence in a Priority Setting Partnership: Knowledge Gaps Between Healthcare Providers and Oesophageal Cancer Patients

Abstract Despite the fact that medical information is now more accessible than ever, knowledge gaps remain between patients and healthcare providers (HCPs). To date, patients’ need for information following a diagnosis of oesophageal cancer have not been adequately met.Purpose: The purpose of this study was to identify why knowledge gaps exist between oesophageal cancer patients and HCPs and how to address them. Methods: A 7 set question series was developed for use in a patient/HCP focus group in addition to 11 individual phone interviews with survivors of oesophageal cancer. Qualitative semi structured interviews were conducted to explore oesophageal cancer patients’ access to information. The data was analysed thematically, which involved coding all patient transcripts before identifying and reviewing key themes. Results: The three primary themes that emerged were; Opportunity (HCP team factors and relationship development), Ability (Patient factors), and Priority (Pacing of Information Delivery). Conclusion: Effective communication between patients and HCPs was identified as an integral component to the enhancement of patient knowledge. HCP’s should continue to refine and improve methods of information delivery and encourage conversations regarding information preferences. Patients’ must be clearly encouraged to ask questions or raise concerns to ensure continuous access to information. A dedicated representative in place to relay these concerns may prove beneficial. Understanding patient values and the external factors that influence how patients understand their health may allow HCP’s to make evidence-based recommendations in a way that is individualised to the specific needs of the patient.