Parental involvement in a multidisciplinary PhD programme in neonatal brain injury

Parental and patient and public involvement (PPI) involvement is a core element of the Neonatal Brain Consortium Ireland Ireland (NBCI) since its inception. PPI  representatives were critical to the development of the Consortium and the animations for parent information as well as the NEPTUNE Neonatal Encephalopathy PhD programme in which they are core members involved in PhD supervision, publications, study days and educational outreach. Key outputs have also included national clinical guidelines and parent information.