WHAT MOTIVATES WOMEN TO TAKE PART IN CLINICAL AND BASIC SCIENCE ENDOMETRIOSIS RESEARCH?*

Sanjay K. Agarwal, Estrada S, Sylvia Estrada, Foster WG, Warren G. Foster, Wall LL, L. Lewis Wall, Brown D, Doug Brown, Revis ES, Elaine S. Revis, Suzanne Rodriguez, Rodriguez S
Bioethics · 2007 · vol. 21(5) , pp. 263–269 · doi:10.1111/j.1467-8519.2007.00552.x · PMID:17845471 · W2166479131
article OA: closed CC0 ⤵ 2 in-corpus citations
View on OpenAlex View on PubMed View at publisher
⚙ AI-generated summary by gemini-2.5-flash-lite, 2026-06-12 ⓘ

This study found that women primarily volunteer for endometriosis research due to potential health benefits for themselves or others and scientific advancement, with financial compensation and pleasing their doctor being weak motivators.

One-sentence paraphrase of the abstract; not a substitute for reading it. No clinical advice. How this works

Abstract

BACKGROUND: The objective of this study was to identify factors motivating women to take part in endometriosis research and to determine if these factors differ for women participating in clinical versus basic science studies. METHODS: A consecutive series of 24 women volunteering for participation in endometriosis-related research were asked to indicate, in their own words, why they chose to volunteer. In addition, the women were asked to rate, on a scale of 0 to 10, sixteen potentially motivating factors. The information was gathered in the form of an anonymous self-administered questionnaire. RESULTS: Strong motivating factors (mean score > 8) included potential benefit to other women's health, improvement to one's own condition, and participation in scientific advancement. Weak motivating factors (mean score < 3) included financial compensation, making one's doctor happy, and use of 'natural' products. No difference was detected between clinical and basic science study participants. CONCLUSION: This study is the first study to specifically investigate the factors that motivate women to take part in endometriosis research. Understanding why women choose to take part in such research is important to the integrity of the informed consent process. The factors most strongly motivating women to participate in endometriosis research related to improving personal or public health; the weakest, to financial compensation and pleasing the doctor.

My notes (saved in your browser only)

Condition tags

endometriosis

MeSH descriptors

Altruism Endometriosis Motivation Research Subjects Adult Female Humans Research Subjects Surveys and Questionnaires

Citation neighborhood (sparse)

Too few in-corpus citations on either side for a chart; here are the lists.

Cites (3)

Cited by (2)

References (18)

Cited by (2)

Source provenance

europepmc
last seen: 2026-09-14T06:17:53.580500+00:00
openalex
last seen: 2026-06-10T17:14:06.276822+00:00
pubmed
last seen: 2026-05-13T22:14:48.452140+00:00
unpaywall
last seen: 2026-09-14T06:35:54.356137+00:00
License: CC0 · commercial use OK