"En eld som aldrig blir till glöd" : En innehållsanalys av kvinnors berättelser om att leva med smärta vid endometrios

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This qualitative study analyzed women's autobiographies to describe their experiences of pain with endometriosis, revealing its impact on daily life, healthcare encounters, and existential dimensions.

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Abstract

Bakgrund: Smärta är ett vanligt fenomen hos patienter inom hälso- och sjukvården, där långvarig smärta drabbar fler kvinnor än män. Vid endometrios, en kronisk gynekologisk sjukdom som drabbar omkring var tionde kvinna i fertil ålder, är smärta det mest utmärkande symtomet. Syfte: Att beskriva kvinnors upplevelser av smärta vid sjukdomen endometrios. Metod: En kvalitativ manifest innehållsanalys utifrån fem självbiografier av kvinnor med endometrios. Resultat: Analysen resulterade i tre kategorier: En vardag med smärta, Mötet med vårdpersonal samt Den existentiella dimensionen. Resultatet visar att smärta orsakad av sjukdomen endometrios påverkar kvinnornas vardag på flera sätt. Bristande bemötande får dem att tvivla på sin egen smärtupplevelse och ger känslor av maktlöshet. Smärtan som för majoriteten av kvinnorna dominerar livet påverkar inte bara relationer och sexualitet utan även upplevelsen av att vara kvinna. Slutsats: Smärta vid endometrios innebär ett stort lidande för drabbade kvinnor. Fördjupad kunskap kring sjukdomen behövs för att sjuksköterskor tidigt ska kunna identifiera symtom och ge god omvårdnad, vilket i sin tur leder till förbättrad vårdkvalitet. Mer kunskap kan även bidra till att kvinnorna blir bättre bemötta och känner sig sedda vilket kan minska deras lidande.
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