Parental perceptions of change during early intervention for autism

Parental perceptions of change during early intervention for autism | Research Square window.SnipcartSettings = { analytics: { enabled: false } }; (function() { var accessVector = localStorage.getItem('access_vector') || ''; window.dataLayer = window.dataLayer || []; if (accessVector) { window.dataLayer.push({ user: { profile: { profileInfo: { snid: accessVector } } } }); } })(); (function(w,d,s,l,i){w[l]=w[l]||[];w[l].push({'gtm.start':new Date().getTime(),event:'gtm.js'});var f=d.getElementsByTagName(s)[0],j=d.createElement(s),dl=l!='dataLayer'?'&l='+l:'';j.async=true;j.src='https://www.googletagmanager.com/gtm.js?id='+i+dl;f.parentNode.insertBefore(j,f);})(window,document,'script','dataLayer','GTM-K279D39R'); Browse Preprints In Review Journals COVID-19 Preprints AJE Video Bytes Research Tools Research Promotion AJE Professional Editing AJE Rubriq About Preprint Platform In Review Editorial Policies Our Team Advisory Board Help Center Sign In Submit a Preprint Cite Share Download PDF Research Article Parental perceptions of change during early intervention for autism Kenza Latrèche, Fiona Journal, Michel Godel, Martina Franchini, and 1 more This is a preprint; it has not been peer reviewed by a journal. https://doi.org/ 10.21203/rs.3.rs-4901031/v1 This work is licensed under a CC BY 4.0 License Status: Posted Version 1 posted You are reading this latest preprint version Abstract Background. Parenting a child with autism spectrum disorder (ASD) often brings important challenges. Parents may experience stress emerging during the pre-diagnosis phase, which persists after diagnosis confirmation as additional responsibilities and challenges arise. In parallel, parents are encouraged to seek support for their child. Though parents play critical roles in early intervention, they are rarely considered as predictors and targets of successful intervention. Moreover, little is known about the effects of early intervention on their sense of efficacy and their well-being. Methods. Focusing on the parents’ perspective six months after receiving their autistic child’s diagnosis, we created a parent-reported questionnaire that inquired about their perception of their child's evolution, their own feeling of parental self-efficacy (PSE) and their well-being. In this observational study, the parents of 130 autistic children (M= 2.51 years old) completed the questionnaire. Of these children, 77 were enrolled in an Early Start Denver Model (ESDM) program after diagnosis, whereas the remaining 53 received community-based treatment (CT). Results. Parents reported more positive perceptions regarding their child’s evolution, their PSE, and their well-being in the 6 months following diagnosis confirmation when their child showed more developmental progress. Parents of children enrolled in ESDM also indicated higher PSE and well-being and perceived more progress in their children than parents of the CT group. In children with a developmental delay (developmental quotient below 70), parents in the ESDM group reported greater well-being and PSE compared to parents in the CT group. Conclusions. Objective developmental gains and ESDM are two important factors positively influencing parental perceptions toward their child and their own PSE and well-being. Parents in the ESDM group with more severely affected children also report greater PSE and well-being, suggesting the benefit of this program. Psychiatry Psychology preschoolers Early Start Denver Model community treatment well-being developmental change Full Text Additional Declarations "Ethics statement: The Ethics Committee of the University of Geneva approved the research protocol. Consent statement: Written informed consent forms were signed and provided by the participants’ caregivers." The authors declare no competing interests. Supplementary Files SupportingInformation.docx Cite Share Download PDF Status: Posted Version 1 posted You are reading this latest preprint version Research Square lets you share your work early, gain feedback from the community, and start making changes to your manuscript prior to peer review in a journal. As a division of Research Square Company, we’re committed to making research communication faster, fairer, and more useful. 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Also discoverable on Platform About Our Team In Review Editorial Policies Advisory Board Help Center Resources Author Services Accessibility API Access RSS feed Manage Cookie Preferences © Research Square 2026 | ISSN 2693-5015 (online) Privacy Policy Terms of Service Do Not Sell My Personal Information {"props":{"pageProps":{"initialData":{"identity":"rs-4901031","acceptedTermsAndConditions":true,"allowDirectSubmit":true,"archivedVersions":[],"articleType":"Research Article","associatedPublications":[],"authors":[{"id":339218625,"identity":"eb8146f0-7407-419f-a4bc-47c8f9cca2c1","order_by":0,"name":"Kenza Latrèche","email":"data:image/png;base64,iVBORw0KGgoAAAANSUhEUgAAAZAAAAAyAQMAAABI0h/eAAAABlBMVEX///8AAABVwtN+AAAACXBIWXMAAA7EAAAOxAGVKw4bAAABA0lEQVRIiWNgGAWjYBACCQhlASaZGRhswCQQHCCkRYKBB6IljXQth2ESuLVItvce/vCDQULeXvrwwc8FFecTt7OzX3zAUHMHpxZpnnMJhj0MEoY9fGnJ0jPO3E7c2cxTbMBw7BlOLXISOQYJPAwSjD08PGbMvG23Ezcc5kmTYGw4jFuL/BuDg38YJOx7ePi/MfP+OwfSkv4DnxZpCR7DZqAtiUBb2Jh5Gw4AtbAfY8CnRbInx5hZxkAiuecMm7E0z7FkY6AtzBIJx3BrkTh+xvjjmwob2/Ye5oefeWrsZDecP/7ww4ca3FogwACFx2PAkEBAAzpgf0CihlEwCkbBKBjmAACz/k5uu2A2fwAAAABJRU5ErkJggg==","orcid":"https://orcid.org/0000-0003-0264-4048","institution":"Department of Psychiatry, University of Geneva School of Medicine, Geneva, Switzerland","correspondingAuthor":true,"prefix":"","firstName":"Kenza","middleName":"","lastName":"Latrèche","suffix":""},{"id":339218626,"identity":"986d2a90-4dee-4894-a275-2af49a7e8c4d","order_by":1,"name":"Fiona Journal","email":"","orcid":"https://orcid.org/0009-0001-8269-3765","institution":"Department of Psychiatry, University of Geneva School of Medicine, Geneva, Switzerland","correspondingAuthor":false,"prefix":"","firstName":"Fiona","middleName":"","lastName":"Journal","suffix":""},{"id":339218627,"identity":"d72a408d-dcd6-4294-b2d5-d8275a0e3c93","order_by":2,"name":"Michel Godel","email":"","orcid":"https://orcid.org/0000-0002-9789-3540","institution":"Department of Psychiatry, University of Geneva School of Medicine, Geneva, Switzerland","correspondingAuthor":false,"prefix":"","firstName":"Michel","middleName":"","lastName":"Godel","suffix":""},{"id":339218628,"identity":"2a30c06b-a8ad-4605-a782-86c2dd0eaf32","order_by":3,"name":"Martina Franchini","email":"","orcid":"","institution":"Fondation Pôle Autisme, Geneva, Switzerland","correspondingAuthor":false,"prefix":"","firstName":"Martina","middleName":"","lastName":"Franchini","suffix":""},{"id":339218629,"identity":"19968ede-c7b9-4cc9-bfce-5103487211f3","order_by":4,"name":"Marie Schaer","email":"","orcid":"https://orcid.org/0000-0001-8479-6365","institution":"Department of Psychiatry, University of Geneva School of Medicine, Geneva, Switzerland","correspondingAuthor":false,"prefix":"","firstName":"Marie","middleName":"","lastName":"Schaer","suffix":""}],"badges":[],"createdAt":"2024-08-12 13:52:54","currentVersionCode":1,"declarations":{"humanSubjects":true,"vertebrateSubjects":false,"conflictsOfInterestStatement":false,"humanSubjectEthicalGuidelines":true,"humanSubjectConsent":true,"humanSubjectClinicalTrial":false,"humanSubjectCaseReport":false,"vertebrateSubjectEthicalGuidelines":false},"doi":"10.21203/rs.3.rs-4901031/v1","doiUrl":"https://doi.org/10.21203/rs.3.rs-4901031/v1","draftVersion":[],"editorialEvents":[],"editorialNote":"","failedWorkflow":false,"files":[{"id":62569939,"identity":"08c586b5-405a-414e-a1b3-e6f1c4a428bf","added_by":"auto","created_at":"2024-08-16 02:59:03","extension":"pdf","order_by":1,"title":"","display":"","copyAsset":false,"role":"manuscript-pdf","size":631721,"visible":true,"origin":"","legend":"","description":"","filename":"PreprintFinalRG.pdf","url":"https://assets-eu.researchsquare.com/files/rs-4901031/v1_covered_6ab42ab0-26cc-4a43-8d13-84d5d4539553.pdf"},{"id":62569087,"identity":"397b0dd9-d519-42d3-a05e-e87cf1fd1a23","added_by":"auto","created_at":"2024-08-16 02:51:01","extension":"docx","order_by":1,"title":"","display":"","copyAsset":false,"role":"supplement","size":629113,"visible":true,"origin":"","legend":"","description":"","filename":"SupportingInformation.docx","url":"https://assets-eu.researchsquare.com/files/rs-4901031/v1/6aa77bfd9ef6c8fb679b3073.docx"}],"financialInterests":"\u003cp\u003e\"Ethics statement: The Ethics Committee of the University of Geneva approved the research protocol. 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Parents may experience stress emerging during the pre-diagnosis phase, which persists after diagnosis confirmation as additional responsibilities and challenges arise. In parallel, parents are encouraged to seek support for their child. Though parents play critical roles in early intervention, they are rarely considered as predictors and targets of successful intervention. Moreover, little is known about the effects of early intervention on their sense of efficacy and their well-being.\u003c/p\u003e\n\u003cp\u003e\u003cstrong\u003eMethods.\u003c/strong\u003eFocusing on the parents’ perspective six months after receiving their autistic child’s diagnosis, we created a parent-reported questionnaire that inquired about their perception of their child's evolution, their own feeling of parental self-efficacy (PSE) and their well-being. In this observational study, the parents of 130 autistic children (M= 2.51 years old) completed the questionnaire. 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In children with a developmental delay (developmental quotient below 70), parents in the ESDM group reported greater well-being and PSE compared to parents in the CT group.\u003c/p\u003e\n\u003cp\u003e\u003cstrong\u003eConclusions. \u003c/strong\u003eObjective developmental gains and ESDM are two important factors positively influencing parental perceptions toward their child and their own PSE and well-being. 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