Experiences of women with endometriosis : an Interpretative Phenomenological Analysis

Background: Endometriosis is a common, yet enigmatic chronic gynaecological condition, with an unknown aetiology and no cure, affecting approximately 6-10% of females of a reproductive age. Symptoms include heavy menstrual bleeding, pelvic pain, fatigue and infertility which has a negative impact on daily living. Clinical research aiming to establish the cause of the condition and to develop treatments is ongoing; however, there is a lack of research investigating what it is like to live with the disease. Aim: The aim of the study was to examine the experiences of women with a surgical diagnosis of endometriosis. Methods: Semi structured interviews were carried out with 13 women. Interviews were transcribed verbatim and data analysed using Interpretative Phenomenological Analysis (IPA). Analysis revealed five key themes: making sense, impact on daily life, identity, taking back control and legitimisation. Results: Women reflected upon the journey they travelled in trying to make sense of their symptoms. Diagnosis enabled a fuller understanding of their condition and facilitated increased knowledge and support. The condition impacted on all aspects of daily life and psychological outcomes to the point where ... (continues)