Partners not patients: Healthcare for endometriosis from the perspectives of women and clinicians

Endometriosis is a chronic inflammatory condition experienced by women. Little is known about the disease or how to support those who live with it. I examined healthcare for endometriosis from the perspectives of women and clinicians to identify how care can address women’s needs. I conducted in-depth interviews with 26 women of various sociodemographic and endometriosis experience profiles, and semi-structured interviews with 12 clinicians (general practitioners, gynaecologists). Through a social constructionist framework, I analysed these interviews and identified that, to address the complexities of endometriosis, clinicians must be supported to incorporate women’s knowledge and perspectives into care.