Background: Endometriosis is a chronic gynecological condition that affects about 10% of women of reproductive age. Despite its prevalence, diagnosis is often delayed, misdiagnosis is common, and treatment options are poor. This study aimed…
BACKGROUND: Patients' participation is crucial to the success of randomized controlled trials (RCTs). However, recruiting and retaining patients in trials remain a challenge. OBJECTIVE: This study aims to describe patients' preferences for…
Abstract Study question How should endometriosis management be improved from the patient’s point of view? Summary answer One thousand endometriosis patients proposed 2,587 ideas to improve the management of endometriosis that reflect three …
IMPORTANCE: The COVID-19 pandemic led to the implementation of alternative care modalities (eg, teleconsultations and task shifting) that will continue to be implemented in parallel to traditional care after the pandemic. An ideal balance b…
BACKGROUND: This study aimed to involve patients with chronic conditions in generating ideas for improving their care. METHODS: We performed a citizen science study. Participants were adult patients with chronic conditions recruited in Com…
BACKGROUND: Clinical trial registries may allow for producing a global mapping of health research. However, health conditions are not described with standardized taxonomies in registries. Previous work analyzed clinical trial registries to …