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- chronic_pelvic_pain 1
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Endometriosis is a complex and poorly understood chronic condition with variable symptoms. While many personal informatics tools support self-tracking, fewer leverage artificial intelligence (AI) to generate actionable insights for care. Th…
Intelligent systems for self-management can help patients and improve quality of life. However, designing AI-based systems is challenging because designers need to account not only for user needs, but also for capabilities and practical con…
Managing complex chronic illness is challenging due to its unpredictability. This paper explores the potential of voice for automated flare-up forecasts. We conducted a six-week speculative design study with individuals with endometriosis, …
In chronic conditions, patients and providers need support in understanding and managing illness over time. Focusing on endometriosis, an enigmatic chronic condition, we conducted interviews with specialists and focus groups with patients t…
BACKGROUND: Self-tracking through mobile health technology can augment the electronic health record (EHR) as an additional data source by providing direct patient input. This can be particularly useful in the context of enigmatic diseases a…