Craufurd D

No ORCID on file · 1 paper in corpus

2020

"It's being part of the big picture, even though you're a tiny jigsaw piece"-motivations and expectations of individuals participating in the Enroll-HD observational study.

Journal of community genetics ·doi:10.1007/s12687-020-00459-3

Predictive test guidelines for Huntington's disease (HD) recommend individuals are offered opportunities to participate in research regardless of test outcome. Consistent with most HD centres of excellence, the Manchester Centre for Genomic…