Kokado M

No ORCID on file · 1 paper in corpus · active 2022
2022
Why does it take so long for rare disease patients to get an accurate diagnosis?-A qualitative investigation of patient experiences of hereditary angioedema.
PloS one ·doi:10.1371/journal.pone.0265847

IntroductionMany patients with rare diseases experience a diagnostic delay. Although several quantitative studies have been reported, few studies have used a qualitative approach to directly examine how patients with rare disease obtain a d…