Kurinczuk J

No ORCID on file · 1 paper in corpus

qualitative 2019

'I haven't met them, I don't have any trust in them. It just feels like a big unknown': a qualitative study exploring the determinants of consent to use Human Fertilisation and Embryology Authority registry data in research.

BMJ open ·doi:10.1136/bmjopen-2018-026469

ObjectivesTo explore why and how fertility patients decide to allow (or deny) the use of personal data held in the Human Fertilisation and Embryology Authority registry for linkage and research.DesignA qualitative study was conducted using …