{"paper_id":"f7010cf8-0bd7-4126-baeb-f72a8c5354c6","body_text":"Projects per year\nAbstract\nAlthough often represented as a women’s reproductive disease, endometriosis also appears in people who have had hysterectomies, transgender men, genderfluid and non-binary people, pre-menstrual and post-menopausal people, and in rare cases, cisgender men.\nIts symptoms commonly include pain with menstruation, as well as chronic pain, infertility, pain with sexual intercourse, fatigue and more. Despite this full-body impact on one’s quality of life, endometriosis is commonly associated with just having “bad periods.”\nWe are four authors from three countries looking at different aspects of endometriosis diagnosis, awareness and patient advocacy. This article emerges from a joint online presentation of our research looking at potential ways to improve awareness and patient care, and promote faster diagnosis.\nOur methods include social scientific and qualitative research including interviews, surveys, focus groups, participant observations and collaborations with people living with endometriosis. We identified some clear changes that are needed to promote awareness of the disease, and subsequently reduce diagnostic timelines.\n| Original language | Danish |\n|---|---|\n| Publication date | 11 Apr 2022 |\n| Publication status | Published - 11 Apr 2022 |\nProjects\n- 1 Finished\n-\nFEMaLe: Finding Endometriosis using Machine Learning\nKirk, U. B. (PI), Nielsen, O. B. (Award holder), Nyegaard, M. (CoPI), Rytter, D. (CoPI), Hansen, K. E. (Participant), Forman, A. (Participant), Horne, A. W. (Participant), Saunders, P. T. (Participant), Saraswat, L. (Participant), Bokor, A. (Participant), Barko, B. (Participant), Zondervan, K. T. (Participant), Becker, C. M. (Participant), Rahmioglu, N. (Participant), Bourdel, N. (Participant), Rémy, B. (Participant), Bliznuks, D. (Participant), Meijer, S. (Participant), Raghothama, J. (Participant), Sales da Silva, B. (Participant), Møller, G. L. (Participant), Sziráczki, N. (Participant), Goethe, O. (Participant), Djokic, K. (Participant), Todic, N. (Participant), Salamon, A. (Participant), Andersen, A. M. V. (Participant) & Nielsen, L. J. (Participant)\n01/01/2021 → 30/06/2025\nProject: Research\nResearch output\n- 1 Poster\n-\n'It makes women feel like they’re being overdramatic’:The Influence of Social Norms and the Media on Young People’s Perceptions of Endometriosis\nTomlinson, M. K. & Kirk, U. B. (Member of author collaboration), 20 Oct 2022.Research output: Contribution to conference › Poster › Research › peer-review\nActivities\n- 2 Lecture and oral contribution\n-\nEksperthøring i Folketingets Sundhedsudvalg om Endometriose\nKirk, U. B. (Lecturer)\n25 May 2023Activity: Presentations, memberships, employment, ownership and other activities › Lecture and oral contribution\n-\nForetræde til Folketingets Sundhedsudvalg om Endometriose\nKirk, U. B. (Lecturer)\n2 Mar 2023Activity: Presentations, memberships, employment, ownership and other activities › Lecture and oral contribution\nCite this\n- APA\n- Author\n- BIBTEX\n- Harvard\n- Standard\n- RIS\n- Vancouver","source_license":"CC0","license_restricted":false}