{"paper_id":"ca1148ee-351c-4fad-bcd5-7c2c7668a293","body_text":"Content uploaded by Mieke van den Akker\nAuthor content\nAll content in this area was uploaded by Mieke van den Akker on Mar 20, 2025\nContent may be subject to copyright.\nRESULTS - QUANTITATIVE RESULTS - QUALITATIVE\nDiscrepancies between perceived and actual Endometriosis\nknowledge\nKey predictors Endometriosis knowledge:\nMenstrual knowledge (OR = 9.8; 95 %; CI: 0.6 – 3.9; p =\n0.007)\nAge (OR = 4.2; 95 %; CI: 0.2 – 2.6; p = 0.018)\nUniversity (OR = 1.3; 95 %; CI: 0.6 – 5.8; p = 0.017)\nInternet (OR = 2.2; 95 %; CI: 0.03 – 1.5; p = 0.041)\n8 % of the varience in Endometriosis is explained by the model\nEnhanced awareness of menstrual health driven by digital\nmedia\nYounger generations exhibit fewer taboos and greater\nopenness due to growing up with more accessible\nressources\nIncreased Endometriosis awareness and knowledge due\nto enhanced menstrual health awareness\nExpanded information access may lead to misinformation\nHudelist, G., Fritzer, N., Thomas, A., Niehues, C., Oppelt, P., Haas, D., Tammaa, A., & Salzer, H. (2012). Diagnostic delay for endometriosis in Austria and Germany: Causes and possible consequences. Human Reproduction (Oxford,\nEngland), 27(12), 3412–3416. https://doi.org/10.1093/humrep/des316\nKuckartz, U., & Rädiker, S. (2022). Qualitative Inhaltsanalyse: Methoden, Praxis, Computerunterstützung: Grundlagentexte Methoden (5. Auflage). Beltz Juventa.\nMoritz, A., Bierschneider, B., Bambeck, M., Männel, N., & Röhrig, M. (2020, December). Basiswissen Endometriose. Endometriose-Vereinigung Deutschland e.V. https://www.uniklinik-duesseldorf.de/fileadmin/Fuer-Patienten-und\nBesucher/Kliniken-ZentrenInstitute/Kliniken/Klinik_fuer_Frauenheilkunde_und_Geburtshilfe/Unsere%20Zentr THE ENDO GAP 90 en/Endometriose/Homepage_Neu/EVD_Broschuere_Basiswissen_Endometriose_ Webseite.pdf\nNational Cancer Institute, U.S. Department of Health and Human Services, & National Institutes of Health. (2005). Theory at a Glance: A Guide for Health Promotion Practice (Vol. 2).\nSarria-Santamera, A., Orazumbekova, B., Terzic, M., Issanov, A., Chaowen, C., & Asúnsolodel-Barco, A. (2020). Systematic Review and Meta-Analysis of Incidence and Prevalence of Endometriosis. Healthcare, 9(1), 29.\nhttps://doi.org/10.3390/healthcare9010029\nWróbel, M., Wielgoś, M., & Laudański, P. (2022). Diagnostic delay of endometriosis in adults and adolescence-current stage of knowledge. Advances in Medical Sciences, 67(1), 148–153. https://doi.org/10.1016/j.advms.2022.02.003\nINTRODUCTION\nTHE ENDO GAP\nThe current state of knowledge of menstruating people about Endometriosis in Germany\nAn exploratory mixed methods study\nDISCUSSION CONCLUSION\nEndometriosis is a common condition among menstruating\nindividuals (10 % global prevalence, up to 50 % involuntarily\nchildless) (Sarria-Santamera et al., 2020)\nApproximately 40,000 new cases in Germany annually,\noften under- and undiagnosed (Moritz et al., 2020)\nSevere pain symptoms are frequently misinterpreted,\ncausing diagnostic delays of over ten years (Hudelist et al.,\n2012; Wróbel et al., 2022)\nStigma, menstrual taboos, and pain normalisation hinder\ndiagnosis (Hudelist et al., 2012)\nNeed for research on public awareness of Endometriosis in\nGermany\nResearch question:\nWhat is the current (perceived) state of knowledge among\nmenstruating people in Germany regarding Endometriosis?\nThree key aspects are central to understanding Endometriosis knowledge and awareness:\nInfluence of menstrual knowledge:1.\nIncreased focus on menstrual health has led more young people to seek professional\nconsultation\na.\nIncreased awareness towards gynecological diseases like Endometriosisb.\nNeed for improving understanding through enhanced educational programsc.\nInfluence of generational differences:2.\nIncreased engagement and awareness among Gen Z populationa.\nIncreased desire of knowledge regarding menstrual healthb.\nIncreased risk of misunderstanding due to disease’s complexity (underestimation)c.\nInfluence of digital media:3.\nIncreased visibility and information availability through social media platformsa.\nIncreased risk of content credibility due to lack of professional informationb.\nIncreased involvement of medical professionals neededc.\nMultifaceted approach needed:\nPublic campaigns and discussions\naddressing societal taboos\nFurther research analysing:\nMost effective information\nsources within different\ndemographics\nPerception and influence of\nhealthcare providers\nEndometriosis awareness\namong Gen Z and younger\nLong-term impacts of\nEndometriosis knowledge and\nawareness\nREFERENCES\nMETHOD\nStudy Design: Mixed methods research with a cross-sectional sample\ncombined with semi-structured expert interviews\nSample & Recruitment: Active and passive recruitment was carried\nout through the Snowball Method using Social Media platforms and\nmedical centres. For the quantitative part a sample of N = 316\n(average age of 30; SD = .779) was collected and four expert interviews\nwere conducted.\nInstruments & Analyses: Participants of the quantitatve phase of the\nstudy filled out an online questionnaire based on the Health Belief\nModel (National Cancer Institute, 2005) to analyse their perceived and\nactual knowledge on Endometriosis. Descriptive statistics and ordinal\nlogistic regression assessed current Endometriosis knowledge. The\nsubsequent qualitative phase involved expert interviews, with analysis\nguided by Kuckartz and Rädicker's (2022) qualitative content analysis\nmethod.\nKeywords: Endometriosis, Menstruation, Gender Data Gap, Gender Health Gap, Gender-Awareness, Menstrual Knowledge, Health Behaviour\nMieke van den Akker , Franziska von Mandelsloh , Prof. Dr Johanna Buchcik\nUniversity of Applied Sciences (HAW) Hamburg, Faculty of Life Sciences, Department of Health Sciences\nUniversity of Applied Sciences (HAW) Hamburg, Faculty of Business and Social Sciences, Department Nursing and Management\n1 12\n1\n2","source_license":"CC0","license_restricted":false}