{"paper_id":"86df5a02-686c-44ec-a118-4000847a7a07","body_text":"Being an outsider: transgender and non-binary experiences within online endometriosis communities\nAbstract\nIntroduction\nWithout even a voice to live, how can we then have a voice in other spaces, especially ones that are so gendered. So, I think since we are already having struggles with our voice just to begin to live with life, it would really have to improve before we could be like, ‘Oh we can live a life and with endo and be heard’.\nMethods\nPositionality\nParticipants\nInstruments\nProcedure\nEthical considerations\nData analysis\nFindings\nFeeling isolated due to a lack of inclusive endometriosis support groups\nYes I found nothing . . . when I surfed last year, I found nothing, absolutely nothing. . . It’s scary because it makes me feel alone.\nI think quite isolated again, because I think there its even though endometriosis feels pretty invisible anyway, you then kind of feel invisible to your own community too, who are supposed to just understand and relate to you, which they still do but it’s difficult when you are not included in that way [gender identity].\nExclusion because of gendered language in endometriosis support groups\nThe language [gendered language] that was being used and I just kind of felt like, I just didn’t belong. That was the feeling I had, I felt isolated and just that I didn’t fit in properly.\nUncomfortable and yeh just like anxious and triggered and stuff by it because it’s like you have to read through all of it, like you still want to read all the information, you still want to learn all the stuff and talk to people but there’s a lot of gendering stuff that is hard to sift through and constantly bombard yourself with.\nIt’s been nice when I go online and I see people like, you know Endogram and stuff, and she is putting up posts you know that it is not a female disease, and she uses such inclusive language and that’s just comforting.\nExperiences of transphobic hate from endometriosis communities\nYou get down voted to hell and you get hate brigaded, like you get brigaded on Reddit and you will have people go through your post history and just down vote everything they possibly can in droves.\nSo I would just hope that if a person like me came out and said I have endo, hopefully we’re not quote and unquote shot down for it automatically because we’re not the majority and what is assumed to be the only way. Otherwise we’ll never be able to be heard.\nA cisgender woman with endo commented, ‘Well trans people can’t have infertility from endo, trans doesn’t count’. And that was really hurtful because firstly, trans people can still get pregnant and they were incredibly misinformed. So although I haven’t tried to get pregnant, I could still have infertility problems, and probably trans and non-binary people suffer with similar issues. Secondly just saying that trans people with endo don’t count because they don’t have infertility problems is frustrating.\nTwo other people who followed them came into my comments and commented that I was disgusting, that I was not worthy of being a man, that I’m spreading misinformation about trans people having endo. Which was horrible . . . and traumatic.\nWe don’t exist. That’s basically it, we don’t exist and then we are like, We exist! It’s like, no you fucking don’t. Shut up shut up, you are invalidating my woman hood by existing and having the same fucking disease as me. Get back in the box. We don’t want you here. So, it’s either worse cause like, you had to, but no I need help!\nDiscussion\nConclusion\nEthics statement\nDeclaration of conflicting interests\nFunding\nORCID iDs\nData availability statement\nReferences\nCite\nCite\nCite\nDownload to reference manager\nIf you have citation software installed, you can download citation data to the citation manager of your choice\nInformation, rights and permissions\nInformation\nPublished In\nKeywords\nData availability statement\nArticle versions\nAuthors\nMetrics and citations\nMetrics\nJournals metrics\nThis article was published in South African Journal of Psychology.\nView All Journal MetricsPublication usage*\nTotal views and downloads: 622\n*Publication usage tracking started in December 2016\nPublications citing this one\nReceive email alerts when this publication is cited\nWeb of Science: 1 view articles Opens in new tab\nCrossref: 1\n- Editorial: Continuity, transformation and the future of the South African Journal of Psychology\nFigures and tables\nFigures & Media\nTables\nView Options\nView options\nPDF/EPUB\nView PDF/EPUBAccess options\nIf you have access to journal content via a personal subscription, university, library, employer or society, select from the options below:\nloading institutional access options\nPsySSA members can access this journal content using society membership credentials.\nPsySSA members can access this journal content using society membership credentials.\nAlternatively, view purchase options below:\nPurchase 24 hour online access to view and download content.\nAccess journal content via a DeepDyve subscription or find out more about this option.","source_license":"CC0","license_restricted":false}