{"paper_id":"5841966e-8fa5-4bba-b5ac-44a820c2d090","body_text":"Sarria-santamera, Antonio 2020 Complex methods to assess complex problems: \nusing Natural Language Processing to explore Health Related Qualitiy of Life in \nendometriosis International Journal of Integrated Care, 21(S1) : A325, pp. 1-8, \nDOI: doi.org/10.5334/ijic.ICIC20467 \n \n \n \nCONFERENCE ABSTRACT \n \nComplex methods to assess complex problems: using Natural Language Processing \nto explore Health Related Qualitiy of Life in endometriosis \nICIC20 Virtual Conference – September 2020 \nAntonio Sarria-santamera1,4  \n1: Nazarbayev University School Of Medicine, Nursultan, Kazakhstan \n4: REDISSEC, Spain \nBackground and Objectives:  \nEndometriosis is a benign, although chronic painful condition that represents a major burden in women’s life, \naffecting all the domains of their health related quality of life (HRQL).  The objective of this work is to conduct \na Systematic Review of Systematic Reviews assessing HRQL of women with endometriosis, and to test a \nmethodology based on Natural Language Processing (NLP) to assess factors associated with losses of HRQL \nlinked with the most relevant clinical symptoms that women with endometriosis experience: pain and \ndyspareunia. \nMethods: \nWe extracted free text from articles included in the Systematic Reviews with 'Pain' and 'dyspareunia' as \nkeywords, and we used NLP to identify their occurrences, grammatical variants and meaningful context words. \nOur model used a word2vec skip-gram approach to predict context following our keywords. \nResults:  \nText data included 6,430 context words corresponding to 1,655 unique words in the 17 different systematic \nreviews that were included for review. \nConclusions:  \nThe method we have tested using NLP has demonstrated to be valid to capture the complexity of issues that \nsurround endometriosis and affects women´s HRQL. Among the diversity of symptoms that women with \nendometriosis experience, chronic pelvic pain has the highest impact on their HRQL. Pain affects their physical \nhealth, but also the social and functioning dimensions of women’s life. Painful intercourse has also a significant \nimpact on the sexual life of women with endometriosis, and disturbing the emotional wellbeing of women. \nHRQL is also affected by the clinical complexities of endometriosis, the difficulties to reach to a diagnosis as \nwell as to provide women with effective medical care. Different measurements, instruments and approaches \nhave been proposed to measure HRQL in endometriosis, but it seems necessary the use of common \ninstruments to facilitate comparisons across studies.","source_license":"CC0","license_restricted":false}